NeuroTalk Support Groups - Spinal cord Stimulator...Bobber look!!

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Spinal cord Stimulator...Bobber look!! (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/112535-spinal-cord-stimulator-bobber-look.html)

Quote:

Originally Posted by bobber (Post 612212)

vanna
How long was your trial,,some are 1 week , I hear of others being as long as 1 month,,and how long have you had RSD and is it stage 1 ? How long have you had tha SCS..and is your RSD in 1 limb,lower body,ect,,,how long did you have RSD before trying the SCS and is it still successfull ? and are there any meds that seem to help with the SCS,,Its alot of questions,but As others have said,what is good for one , may not be for another,,but I think by talking to other patients and looking for a corralation in symptoms,severity,ect,,helps to determine . do you know if your in SMP or SIP ? thanks fo the imput,,,,bobber

I had RSD and Brachial Plexopathy (in all 4 limbs) for 2 years prior to me receiving my 2 SCSs. It will be a year soon, and they still help me tremendously with the nerve pain. Initially, they helped more symptoms (muscle fatigue, tremors, burning, numbness) but all of those problems resurfaced after around the 6 month mark. Nonetheless, the stims still provide relief for the "nagging" nerve pain. The only problems I have with them (so far) is the implants cause more of a pressure-type pain in my lower back. Also, I'm hoping it's just my imagination, but both implants may have started t o migrate..... which I hope is not true because I'd love to keep them in. I don't know what SMP or SIP stands for, and I don't know what stage of RSD that I am technically in (I was never told). The only thing my Pain Management doctor told me was that I have Lumbar RSD (but the worse burning areas for me is top of feet and shins).

As far as how long I will get relief from the SCSs, only time will tell. But as you, and everyone else with this problem knows, even a mere MINUTE's worth of relief is gratefully welcomed ;)

:hug:Vanna

Quote:

Originally Posted by vannafeelbettr (Post 612613)

Vanna.. I chuckled to myself when you said even a minutes worth of relief is gratefully welcomed...well I gotz that moment just the other day...What a price to pay but I had a colonscopy and for the 3.5 minutes it took for me to take a nap and come back...that is the first 3.5 minutes I have had in 3 years of my RSD with out exsuciating pain...it was heaven.... give me more of that, mister!!!

KS:D

Vanna
Thank you for your responds.and as you and KS said,,i too value every minute that God gives us painfree,its encourageing and that means alot and im very appreciate,I too have it in both feet and my shins,,my shins look as if someone has polished them and their made of glass,,my vasamotors are in bad shape ,and my r-foot stays colder than the left,both top and bottom,the I in sip means that it is intependent now , and basicly has a mind of its own,and a stimulator will probually cause a spread dut to aggaravation of the nerve where smp is managed good with a stimulator,,I was just hopeing to find someone who is [diffenatly]in sip and got relief from a stimulator....I do hope and pray that your leads have not migrated,,what makes you suspect this? more pain? less effective/ or the anoyance of the unit in your back that you mentioned,,,,,I wish you the best,,,,,,,bobber

Or this one??

I searched for spinal cord stim to find these.