Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-19-2010, 06:30 PM #11
AintSoBad AintSoBad is offline
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Although I have rsd, I use the patches, I get about three (cut) out of a whole one.
I use them on my neck, and low back, the places where I have disc problems.
I've never used a whole patch,
Just because I find them effective for what I need, and my medications work very well, but not for that disc pain. (Sorry for that ill constructed sentences today, cluster HA.)

I also cut them for use on my forearms, around my wrists and across the top of my hands. (occasional) If I hafto type a lot, or if I'm playing my guitar a lot...
Often, just putting them on my forearm (cut them longways) down the top of my hand, takes the pain out of my hands. (TOS).

pete
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Old 01-19-2010, 06:53 PM #12
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I just started the patches 3 days ago and today had bad naseua-Anyone experience this?
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Old 01-19-2010, 08:14 PM #13
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Originally Posted by edever34 View Post
I just started the patches 3 days ago and today had bad naseua-Anyone experience this?
I don't know about nausea, but as I said, I 've never used an entire patch.
Check the literature.
Call your doc, maybe start with less.
(I'm naturally nauseated).

I had a friend who used like 5 of those things on her back. Think that's overdoing it?
I was under the impression that these are an "addendum" to our other pain meds. Or, for very localized pain. Am I wrong?

pete
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Old 01-19-2010, 09:13 PM #14
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I love them! I do, however have to tape them down each night. That tends to leave sticky places and sores. Seems like we RSD'rs have to pick the lesser of two evils, so sticky butt is MUCH better than the pain! You can cut them up and use them for trigger points, which is great!
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Old 01-20-2010, 08:38 AM #15
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Default Hi,

edever, I have had the naseua when I left them on too long and it could be that you need to get use to them. If you have just started using them, it could be from that.

I cut mine too, Pete a lot of times. They work good either way.

Ada
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Old 01-20-2010, 09:37 AM #16
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Kim,
I've found that they may stick better if you run HOT water over the sticky side for a few seconds before you put them on... especially when I cut them in smaller pieces.
Or, if they loose their "stick", you can do the same.
The gel is water based, so it doesn't hurt...

Good luck!

pete
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Old 01-20-2010, 10:50 AM #17
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Ahhh!

Thanks Pete! I have become quite creative with anything that will ease my pain. I would have never thought of that! Let you know how it works!

Kim
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Old 01-20-2010, 05:14 PM #18
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Quote:
Originally Posted by daniella View Post
I can't tolerate these but I can't tolerate a finger on my pain area when in a flare up. I know they help some though. Mrs D always said though placement is key and it is not always on the area. If you search about the patch it should come up on placement
Thanks Daniella,
The doctor told me to place the 1/2 patch below the neuromas. But now, with the help from you guys, I put another 1/2 on the back since the neuroma hurts right through to the underside of foot. Thanks for you info!! Greatlyappreciated.
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Old 01-20-2010, 05:16 PM #19
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Originally Posted by Jimking View Post
My wife who has RSD could not handle the lidocaine patch, complaining that it burned her skin. However, she does use lidocaine cream very often and says it helps with pain.

I use both of them, too. Sometimes, the patches don't feel right, and then i don't use them. It is such a game of figuring everything out. Thanks for the reply.
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Old 01-20-2010, 05:44 PM #20
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Thank you for response-I did cut them-but put on 6 places. I will try to cut down and get used to them. When I said I was nasueated I mean HORRIBLE- Anyone else get this side effect? It is on the pamplet .
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