Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-20-2010, 09:53 PM #21
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Originally Posted by edever34 View Post
Thank you for response-I did cut them-but put on 6 places. I will try to cut down and get used to them. When I said I was nasueated I mean HORRIBLE- Anyone else get this side effect? It is on the pamplet .
I am with Pete, these are an addendum, I have used them for over five years and am very sensitive, never had any problems with them. The only way to find out if it is the patch is to stop using them completely and see if the nausea goes away. It should leave your system within twelve hours. You need to know if it is the patch that is causing your nausea, and inform your doctor of your side effect.

Jeanie
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Old 01-20-2010, 10:39 PM #22
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Sandy,
I was given Lidoderm patches early in my crps diagnosis. I was also diagnosed iwth Tarsal Tunnel Syndrome in my crps affected foot. I cut them up to fit the affected area where I wanted relief. They were wonderful for the tarsal tunnel. And at the beginning when the pain wasn't so intense they did work for the crps.

I say use them they do work. The only time I had them off was when I was in PT or the shower.

Hoping for a pain free day for all.

Susan


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I have a script for up to 3 Lidoderm patches for 12 hours a day - 2 of which I use on my shoulder, and the other I stick on my upper back just under my cervical spine. I use Voltaren, which is diclofenoc sodium topical gel, (or like a motrin gel, per my PM doc), wherever it would be impossible to put a patch or part of a patch - (you can cut them up in pieces if you want), like on my neck, in my hair, on my hands and feet when they hurt, etc. The equivalent of the Voltaren gel in patches is the Flector patch, which I also have. I use them when I have pain and have used up the Lidoderm for the day, or need more than 3 patches at a time - like when my leg really hurts and I need a patch for it. The Flector patches work pretty well, too, but I like the Lidoderm patches better, so I use those during the day and save the Flector patches for night time.

The patches have medication on them, so when you put them on your skin they numb the skin that they cover. For me, they also serve as a shield between my clothes and my skin. And since I suffer from terrible occipital pain in my head, I rub the Voltaren gel almost every night on the back of my head in my hair to chill the burning pain. Sometimes I put it on my face and the top of my head, too. It works really well and washes off very easily in the shower in the morning.

Let me know if you have any other questions. XOXOX Sandy
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Old 01-20-2010, 10:57 PM #23
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I can't tolerate these but I can't tolerate a finger on my pain area when in a flare up. I know they help some though. Mrs D always said though placement is key and it is not always on the area. If you search about the patch it should come up on placement

Thanks for the advice. I really couldn't sleep without them now. I used to use cold wraps until my doc said that was a big 'no no" with RSD. So, now the patches seem to help. Thanks, Daniella.
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Old 01-20-2010, 11:03 PM #24
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Clove oil..........interesting. My daughter picked up some real Tea Tree Oil from a Whole Foods Store since i read up on natural anti-inflammatories. You should mix it with water in a spray bottle and it is cooling for a while. It takes some of burning feeling away.....I don't know exact measurements, though.
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Old 01-20-2010, 11:08 PM #25
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I cut them up, too. I don't usually use the whole patch. But the doc says that I could put 1/2 half on one foot with the neuromas and RSD and 1/2 on other foot that just has one neuroma, no RSD. I hear that doctors put them all over their bodies when in surgery. Funny, huh? And we are worried about using too many.
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Old 01-20-2010, 11:13 PM #26
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Hi Kim,
I have become a master at cutting them up. Someone said they have tarsal tunnel, too. I have that, also. And the patches help with that as well as the RSD.
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Old 01-20-2010, 11:20 PM #27
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Originally Posted by edever34 View Post
Thank you for response-I did cut them-but put on 6 places. I will try to cut down and get used to them. When I said I was nasueated I mean HORRIBLE- Anyone else get this side effect? It is on the pamplet .
I never felt nauseated from them. I think we all react so differently to medication. I tried not to read that pamphlet since it seemed so long. lol
Hope you feel better.
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Old 01-22-2010, 10:08 PM #28
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My daughter uses the lidoderm patches too but her problem is they work well while on but stir up the pain again when she pulls them off. We have started running them under water to lossen them up before removing them but they still hurt. For us we arent sure the good they do is worth the pain from pulling them off. Anyone have any secrets for getting them off easily? It's funny that at night they pull off and won't stay on but when your ready to removed them after 12 hours they won't come off for anything!
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Old 01-23-2010, 04:44 AM #29
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Shower them off!

I love my lidocaine patches, but yeah, the persistent patch can be a drag. I take a shower with the patch that I am ready to take off. They absorb the water and slide off nicely- no pain or increased skin sensitivity.

Hope this helps!

Lynn
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Old 01-24-2010, 12:14 AM #30
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Originally Posted by Lynns409 View Post
Shower them off!

I love my lidocaine patches, but yeah, the persistent patch can be a drag. I take a shower with the patch that I am ready to take off. They absorb the water and slide off nicely- no pain or increased skin sensitivity.

Hope this helps!

Lynn
I have a compound (cream) that was prescribed for me, it is lidocaine, ketamine and neurontin. When I have am in a flare I will use that instead of the patch.
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