Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-25-2010, 12:39 AM #31
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Haha! Mine fall off during the night. I only wish I could keep them on (my butt)!
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Old 01-25-2010, 11:15 AM #32
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Quote:
Originally Posted by Lynns409 View Post
Shower them off!

I love my lidocaine patches, but yeah, the persistent patch can be a drag. I take a shower with the patch that I am ready to take off. They absorb the water and slide off nicely- no pain or increased skin sensitivity.

Hope this helps!

Lynn

That does work well, but, be sure you have the kind of shower drain that won't let the smaller (cut) peices of the patch, go down!
They swell up, and WILL stop up your drain!

(Always something to watch out for...)

pete
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Old 01-25-2010, 06:27 PM #33
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Originally Posted by cindi1965 View Post
I am right there with her, Jim. I can use the cream though. The patch was working on my arm, but then I could stand the stickiness of them so they put me on the cream. I make a homemade lotion with clove oil, it is cheaper and works just as well and the lido cream.

I have no idea where to reply. Do I hit the button right underneath the message or the bottom quick reply? Don't know. Anyhow, the cream works ok for me. I think I mentioned to you about mixing peppermint and tea tree oil in a spray bottle.......it is on the side of bottle. I get the little bottles at Walmart. Cheaper. Today, nothing is helping. Anyhow, I think I sent you this message before. lol
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Old 01-25-2010, 06:33 PM #34
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[QUOTE=momw/rsdchild;613442]My daughter uses the lidoderm patches too but her problem is they work well while on but stir up the pain again when she pulls them off. We have started running them under water to lossen them up before removing them but they still hurt. For us we arent sure the good they do is worth the pain from pulling them off. Anyone have any secrets for getting them off easily? It's funny that at night they pull off and won't stay on but when your ready to removed them after 12 hours they won't come off for

anything![/QUOTE

Hi momw/rsdchild,
I never thought of showering with them on in order to get them off, but I have actually done the same thing. I usually pull them off carefully, and sometimes they do sting a bit. Good luck....must be tough to have a child with this nasty RSD. Try the shower, I guess.
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Old 01-25-2010, 06:44 PM #35
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Originally Posted by Wilbyfree View Post
I am with Pete, these are an addendum, I have used them for over five years and am very sensitive, never had any problems with them. The only way to find out if it is the patch is to stop using them completely and see if the nausea goes away. It should leave your system within twelve hours. You need to know if it is the patch that is causing your nausea, and inform your doctor of your side effect.

Jeanie
I agree with Pete. I would probably stop using them and see if your nausea gets any better. I know I always react differently from most people with the drugs given to me. So, I would say some people are more sensitive to some things than others. Have you ever tried the cream? Sorry about my replies: they are everywhere since I am still not sure how to do this. Please bear with me. lol
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Old 01-25-2010, 06:47 PM #36
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Originally Posted by kim ames View Post
Haha! Mine fall off during the night. I only wish I could keep them on (my butt)!
Mine fall off the underside of my foot, too. I have neuromas , and the pain goes from top to bottom of foot. The surgery for removal of one neuroma led to the develoment of more plus the stump, thus the RSD. But my little patches on the bottom of my feet fall off.........gross feeling when you find them with your toes or something. lol
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Old 01-26-2010, 01:00 AM #37
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When my brother was younger, and in high school, the only thing that he asked me for one birthday was a few of my lidocaine patches. I could not figure out why, and asked him why on earth that was his birthday wish. I was informed that they were for "experiments". I persisted and was told, "Well, I want to see what they feel like... on places..." Thirteen year old little brothers!

I've woken up before and had my boyfriend kind of look at me funny and had lidocaine patches attached to my head or face... they like to migrate in the night. One morning my cat was looking quite aggravated and she had one stuck to her fur- very undignified for a little kitty.

Lynn
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Old 01-26-2010, 10:46 AM #38
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Originally Posted by ouchymama View Post
Mine fall off the underside of my foot, too. I have neuromas , and the pain goes from top to bottom of foot. The surgery for removal of one neuroma led to the develoment of more plus the stump, thus the RSD. But my little patches on the bottom of my feet fall off.........gross feeling when you find them with your toes or something. lol
I have a suggestion for using Lidoderms on the foot. The two major nerves that supply the toes where the neuromas are found can be better reached by putting Lidoderm on the instep (top) of the foot.
This is what I do for my PN. Cut them into 1/2 or 1/3s and use one piece on each foot. The bottom of the foot, is problematic for absorption, of the drug.

Here is a link showing the nerves in the foot...scroll down to near the end:
https://www.northcoastfootcare.com/f...t-anatomy.html

All the nerves that end up on the bottom of the foot branch off at the ankle and instep.

Lidoderms work best when they interrupt signals at points where all the nerves meet and join. The patches are less effective at the site where you "feel" your pain. So some knowledge of anatomy helps here.

The top of the foot also does not sweat so much and hence the patches stay on better. I never use them on the bottom of my feet..even though that is where the pain originates. I only place them on the top instep.
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Old 01-26-2010, 10:34 PM #39
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Quote:
Originally Posted by ouchymama View Post
Mine fall off the underside of my foot, too. I have neuromas , and the pain goes from top to bottom of foot. The surgery for removal of one neuroma led to the develoment of more plus the stump, thus the RSD. But my little patches on the bottom of my feet fall off.........gross feeling when you find them with your toes or something. lol
You may do well, to have your Dr. order the compounded Rx which include lidocaine. There will be no patches to deal with. Just a cream to rub in.
It also depends what kind of insurance coverage you have....

Good Luck!

pete
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Old 01-26-2010, 10:37 PM #40
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Quote:
Originally Posted by mrsD View Post
I have a suggestion for using Lidoderms on the foot. The two major nerves that supply the toes where the neuromas are found can be better reached by putting Lidoderm on the instep (top) of the foot.
This is what I do for my PN. Cut them into 1/2 or 1/3s and use one piece on each foot. The bottom of the foot, is problematic for absorption, of the drug.

Here is a link showing the nerves in the foot...scroll down to near the end:
https://www.northcoastfootcare.com/f...t-anatomy.html

All the nerves that end up on the bottom of the foot branch off at the ankle and instep.

Lidoderms work best when they interrupt signals at points where all the nerves meet and join. The patches are less effective at the site where you "feel" your pain. So some knowledge of anatomy helps here.

The top of the foot also does not sweat so much and hence the patches stay on better. I never use them on the bottom of my feet..even though that is where the pain originates. I only place them on the top instep.



Mrs. D

Always, right on the money!

I can use the lidoderm patches on my neck, shoulders, and it give me relief right down my arm / hands!
It covers the ulna nerve and carpel tunnel.

I used to put them there, but I find that if I use enough up on the neck and accross the top of the shoulders.
It takes care of my entire arms. Mostly.

thanks, as usual!

pete
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