Originally Posted by momzpeachy

Hi everyone

I thought I would take a minute to post while I'm upset and feeling pretty scared. I spoke with my Doctor yesterday..had a long talk. He has been consulting with Dr. S and other Doctor's regarding my case. He said that I'm a very "complicated case" and the RSD has progressed rapidly into the worst stages. They don't know why it's progressed so fast but Dr. S has some suspicions and wants to look me over. They are doing tests because they feel something is causing the RSD to progress this fast..as in a nerve root(s) being compromised either in the spine or neck..or both! I had both TOS and spine surgery in 2008...within 5 month of eachother. I had spinal cord compression and major nerve damage in the plexus. So they feel something is going on and need to find it. It may not be easy to find though and if they do find it..it may not be an easy fix. Nothing is looking very good for me. I am having issues of very low blood pressure and also high blood pressure, I am dizzy, severe headaches, bathroom issues, nausea, etc, etc. It seems like complete organ involvement now. I'm going downhill and fast!

They are looking at putting me in the hospital SOON to do more tests and try some other treatments while hoping to find the source...if they can fix it..they will he said.

Honestly, I'm scared to death! I'm falling apart and can't handle much more of this. Nobody truly understands how bad and difficult this is...except for some on here. I'm not "me" anymore. I will never be me again...but now what? Where do I go from here. I can't seem to do anything but sleep and crawl under a blanket and not move. The more I move, the worse I get.

I found this great article I wanted to share...

It's kind of scary to read but it explains alot



Take care all...

I could use lots of hugs right now. I've got a stressful day ahead...I will try and call some of you and reply as soon as possible. I'm having a VERY ROUGH week