Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-21-2010, 06:41 PM #1
debbiehub debbiehub is offline
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Default Trgigger Point Injections

The muscles around my left hip area are getting so tight I can barely walk. My doc gave me a trigger point injection and it helped! He only gave me one and I felt like I could use a few around that area in different spots.
My question is how often will your docs give you trigger point injections and when they give them do they only do one. My last doc gave me several but I think they were all from the same syringe

TY
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Kakimbo (01-21-2010)
Old 01-21-2010, 07:00 PM #2
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Hi debbiehub.

I don't have any information for you; but, like you, my left hip is seizing up. I get deep-tissue massages twice a week, stretch like crazy and am on 40mg of Baclofen per day (WAY high dose). I have not gotten any trigger point injections and I am very interested in them.

Sometimes my legs and butt cramp so bad I bite on a rubber spoon to deal with the pain. My therapist cannot believe how tight I am and how my hamstrings are shrinking up. I am terrorfied that one day I may be in a wheelchair.

I, like you would appreciate any information on this. Thanks for the post and thanks for any replies.

Kim
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Old 01-21-2010, 08:23 PM #3
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Default Hi Debbie,

I get triggerpoint injections, have since about 2005. I can honesty say if the holes stayed in me, I would make a good spagetti strainer. I got one last week on the back of my shoulder. I started having problems there after the car accident in December. He did use the same sringe there.

I have had shots, in every part of my body. When I started getting them, it was at the U. of Co. hospital. They used what seemed to me like footlong needles. They did 28 in my stomach area one trip. Didn't even say what it was for. My family Dr. said that it was crazy, they were using me for a gueinna pig and they didn't need to use those size needles. He started giving them to me when he saw PM Drs. weren't going to do anything for me.


He does use more then one needle at times it depends on how big the area is that is giving me trouble. He can run his hands down any area and tell where the pain is. I often wondered how and I have ask him that at times. He has given them to me in my left chest area for the TOS also. I have had them in my foot and also my pelvic area.

It might take more time to calm down the pain then blocks or other treatments but if it's all you got, you go with it.

He also uses lidocaine or ketamine, not steroids. The steroids aren't suppose to be used but 3 times a year so it wouldn't have worked for me. Too many areas to calm down.

I am doing good. The only area he has to work on the most in the past 2 years has been my pelvic pain. I get it calmed down and it starts up again. The summers really make my pain worse too.

I got shots every week. Sometimes 2 times a week. The girls in the office were told to get me in anytime I needed so by doing that, he was able to get me almost painfree.

Some people don't like the ideal of the needle being used due to spread but when you are full bodied anyway, what the heck?

I do hope you find someone who will do them. My thought would be an Anesteologist too. They are pretty good at PM. I thing even better then most PM Drs.

Hope you start feeling better soon.

Ada
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Kakimbo (01-22-2010)
Old 01-21-2010, 09:51 PM #4
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Default TY

thanks for your responses- Kim you sound just like me. I am getting on the baclofen now- I guess it is not helping you? Do you see a PM doc- He would know what trigger point injections are...It really did help a bit and I too go for massage 1x a week but think I may up it to 2xs
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Kakimbo (01-22-2010)
Old 01-22-2010, 03:03 AM #5
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I love massages!

I do see a Pain Doc. I have to say that I am looking for another. My current PM gave me three injections of Lidocaine. Didn't work. Now I just drive for three hours for a six minute med-check. (for narcotics). I live in MD and am hoping to get accepted to John's Hopkins for treatment. The Baclofen is great. I was also on a high dose of Neurontin, which is good. I, however, weaned myself from that because of the nausea and memory loss. I hope that you don't suffer from the same side-effects. I would love to have a great course of meds, but I just cannot deal with the nausea. Kinda have to choose the lesser of two evils...sick or in much pain. I look very forward to my massages. Hope you get relief
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Old 01-23-2010, 04:40 PM #6
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Hey Kim
just started on the baclofen today,[20mg] but within a week im suppose to be up to 30mg,,Im also getting ready to start the gabapentin 300 mg and clonidine 0.1mg Im going to start them a couple days apart,,the last time i started a regime of meds all in one day,,i thought I was going to die,,,,I hope that anyone with info of good results with these meds that im starting will add to this post.. and Debbie..I hope the injections work,,I wish that I could get one to block the pinched nerve in my heel that I think is one of the causes of my rapid spread,,Some of my drs agrre,,but are not willing to act,,,,,,,,,,
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