Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-26-2010, 04:59 PM #1
momzpeachy momzpeachy is offline
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Default Being Admitted tomorrow

Hi all,

I just wanted to send a quick note on what's going on. I'm still struggling along. My bp is still high and everything is still a mess. Even more of a mess then I thought. My MRI reports came in and here it's not an issue with my neck but yet again my Thoracic Spine. It's either another herniation in the same level or Scar Tissue pressing on the nerves encroaching towards the spinal cord. They aren't sure by looking at this MRI which it is because they didn't do contrast. The Doctor's are leaning more towards it being scar tissue which would make sense for all these symptoms but so would a herniation..UGH! He said my nervous system is completely out of control and that is the reason for lots of these symptoms plus the RSD. "Autonomic Dysreflexia" is what it's looking like. The Dr said he is admitting directly into the hospital and lots will be happening. I need to be monitored plus lots of tests and MRI I'm sure. Looks like another spine surgery in my near future and a LONG hospital stay. I am not looking forward to it but what choice do I have? I'm so sick of this...and on top of it all...I caught a cold thanks to my son who decided to share. It's not helping me any. I really can't seem to win..not at all!

I will try and stay in touch when I can while in the hospital to keep you updated on how I'm doing. I think I'm in for a rocky road..and not the ice cream either

take care all of you...hope to be in touch soon
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Old 01-26-2010, 06:51 PM #2
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Good luck, I can't say that I am surprised...I will be praying for you and a quick recovery...try to stay positive, because being a little positive goes a long way...Soft hugs to you

Sandy

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Originally Posted by momzpeachy View Post
Hi all,

I just wanted to send a quick note on what's going on. I'm still struggling along. My bp is still high and everything is still a mess. Even more of a mess then I thought. My MRI reports came in and here it's not an issue with my neck but yet again my Thoracic Spine. It's either another herniation in the same level or Scar Tissue pressing on the nerves encroaching towards the spinal cord. They aren't sure by looking at this MRI which it is because they didn't do contrast. The Doctor's are leaning more towards it being scar tissue which would make sense for all these symptoms but so would a herniation..UGH! He said my nervous system is completely out of control and that is the reason for lots of these symptoms plus the RSD. "Autonomic Dysreflexia" is what it's looking like. The Dr said he is admitting directly into the hospital and lots will be happening. I need to be monitored plus lots of tests and MRI I'm sure. Looks like another spine surgery in my near future and a LONG hospital stay. I am not looking forward to it but what choice do I have? I'm so sick of this...and on top of it all...I caught a cold thanks to my son who decided to share. It's not helping me any. I really can't seem to win..not at all!

I will try and stay in touch when I can while in the hospital to keep you updated on how I'm doing. I think I'm in for a rocky road..and not the ice cream either

take care all of you...hope to be in touch soon
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Old 01-26-2010, 07:42 PM #3
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Dear mommzpeachy,

I've been following your postings lately and so relieved to hear that you are going to get some help. Good luck with everything. I hope your doctors are able to get to the bottom of the problem and that you find relief from all this.

Sending warm positive thoughts your way.

MsL
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Old 01-26-2010, 07:49 PM #4
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Quote:
Originally Posted by Mslday View Post
Dear mommzpeachy,

I've been following your postings lately and so relieved to hear that you are going to get some help. Good luck with everything. I hope your doctors are able to get to the bottom of the problem and that you find relief from all this.

Sending warm positive thoughts your way.

MsL
Momzpeachy....

Your doctor is doing the right thing... not really what you wanted but they need to monitor you, get some answers and hopefully help you feel better... Best wishes for a quick intervention and soon you can come back and update us.. I will pray for you......

KS....
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Old 01-26-2010, 07:53 PM #5
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I sure hope they can find and fix everything that they can , even a few "fixes" should help you feel better.

Keep in touch when you are able too, we'll be thinking of you.
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Old 01-26-2010, 07:56 PM #6
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I'm so glad (and relieved) to hear that you're getting the medical attention you need. Update us as you can but concentrate of getting better.....and feeling better.
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Old 01-26-2010, 08:04 PM #7
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The best of luck to you - I will be keeping you in my prayers!! I am glad that you will be getting the medical attention that you seem to need right now.

XOXOX Sandy
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Old 01-26-2010, 08:58 PM #8
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Wow, I will be praying for you. I have several issues and I have had 2 surgeries for spine repair. I have a total of 11 herniated disk. I had the neck repaired in '08 and T7-8 repaired in '09. This repair did not go well and am planning on having it repaired again at Cleveland Clinic. I also have a T11-12 that bothers me and some L's. I have very little strength. I also have several spots on the brain that they are still diagnosis.

Hope they can find out more for you. Keep us posted.
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Old 01-26-2010, 11:30 PM #9
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momz
to me , its great news..you'll be monitored around the clock,,I hope and pray they find and fix the problem,,you are in a better place,,at least you wont die on the couch,,,whats going is serious,,enjoy the stay .look positive,,at least you have the resources to help you,,,Im happy that they admitted you.. you will be ok,,and we will lift you up in prayer,,,,keep us posted and thank your maker,,,,,,,,,,,,,,
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Old 01-27-2010, 12:05 PM #10
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Default Hi,

I do hope that they can find out what is causing your problems and take care of it.

I am in PT now for neck and thoracic spine problems. I know what you are going through. I have had thoracic injuries for 11 years but was doing good until my car accident in Dec. I had just gotten out of PT last year and my PTist had my thoracic spine doing good. I am trying to avoid any surgery at this point. He said he'd know after we get done what my injuries are. The man is better then a Dr. at diagnosing.

Scar tissue is one of the problems I am having in several parts of my body. He's working on that too, to get it loose. Drs. around here don't want to do surgery on scar tissue. I know first hand on that from seeing them. If it needs to be taken care of then they should in my book. I do know it can come back but it is still a medical problem in the long run.

I'm glad they are going to admit you and do the test you need to find the answers. I hope this helps them to get things doing better for you.

Ada
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