Hey Everyone... I just wanted to leave a post about a AWESOME benefit concert called Rock Out To Knock Out RSD that a girl named Ashley in Bakersfield, CA is putting together...

Ashley along with her mother Lori are working SO hard trying to find bands, media, donations ect.... You name it they are doing it!!

This concert is for such a good cause, RSD... They are trying to raise donations for this concert for the awareness of RSD!!!! ALL proceeds from this concert goes to help the awareness of RSD...

Here are some of the details:

If you are reading this Rock Out To Knock Out means something to you, so thank you.
Ash and I meet with such a great, and down to earth person on Sat. and she gave us some great idea's.. The major one is to put off Rock Out To Knock Out until sometime in Sept. She made such great points, Ash thought about it and desided today to go ahead with it. It will give her more time to get her non-profit number, sponcers, radio and tv time ect. Soooooo for all those that are helping, we can breath just a little easier, but just a little lol..
Keep sending in those donations, or drawing (had to change that from raffle lol legal issues already). You can not have a raffle in the State of Calie. thank goodness four our legal aide. hehehe
Here is the address again..

Rock Out To Knock Out RSD
P.O. Box5332
Bakersfield, Ca 93388-5332

Peace and less pain hugs,
Lorie

OK, we didn’t want to start a riot or any thing.. The moshing begins even before the concert lol..
We will continue to have the Kick off to Rock Out To Knock Out RSD on March 24th. It will be a great way to spread the news about RSD and raise some money for the “Big One”..
So, if you are in a band and want to play the Kick Off Rock Out To Knock Out please let me know. We need a list of all bands to print up posters and people want to advertise on their web site. What a great way to get your band out there, twice lol. What a great way to enjoy great food and awesome music.. I am up for music any time, how about you?
So, smile and get ready to have a blast at the ROCK OUT TO KNOCK OUT KICK OFF CONCERT! We still need items for the drawing, ask, ask ask..
Peace and less pain hugs,
Lorie
Vice President
Rock Out To Knock Out RSD, 1 and 2 lol
P,S, Did you notice I moved up in the world lol Vice President wahoo.. I will have to thank the boss..


I have known Lori (mother) and Ashley (daughter) for about 5 months now... No, I do not know them in person, although I sure wish I did... Fingers crossed that I will be able to fly out to CA in Sept for the BIG concert! Anyhow, I met these two gals off of myspace.com through a RSD support group called "Life Goes On" (which is a WONDERFUL group!! Group leader is a gal named Lisa who is AMAZING!!!!!!!!)...... Lori along with her daughter Ashley BOTH have RSD...

Ashley is also part of a myspace.com RSD group called "Fight RSD"... This group consists of 4 WONDERFUL girls... Ashley 16 from CA, Anabel 15 from MI, Kara 16 from FL, and Nikki 16 from NY... Fight RSD is a really cool group they have over 356 members.... These girls all work together hard to rasie awareness for RSD!!! These girls all have RSD, met off myspace.com BUT never met in person... Put together their website, and work their tails off! BIG thumbs up to them I say!!!!

I appreciate EVERYONE who takes their time to read this... IF ANYONE is able to help in any shape, way, or form...... PLEASE contact Lori and Ashley at the above address or at myspace.com on the Fight RSD site that the girls host... I know that they would all absolutely LOVE you for it!

Thanks Alot!!

Always,
-Heidi

Hi Heidi,
You made my day. I am so happy to hear you are going to remisssion.

I live in CA. I hope I will be able to attend.

Thanks so much for sharing your story. Big Hugs, Roz

Wow Heidi,
That's a great story, congratulations to everyone involved - we have a couple of people on the board from Bakersfield, hope they see this!
all the best.

Bumping this up cause it is so kool.