I can't stand it as my memory has not hit the dumper...Seems like I can not remember anything.. I know our little friend is a brain affected condition but I tell ya... this is cruel.... anyone??? Lately, I am not beating myself up over it but it is crazy... one second to the next.. I am not remembering...

Hugz friends...KS

I hear ya..Your not alone with this at all. Can't blame everything on the meds. Although,,Lyrica has the effect. Sometimes i find myself writing things down and the list is not long. Have to look at the positive side though. I forget a lot of the negative things the doctors tell me I CAN"T do. So be it.
Have a safe evening and a pain free tomorrow

BTW... I am not on ANY meds either so I can't blame any of my mindless losses on that!!!!!!

Ditto .. mellowguy...

KS

I have this same problem since I started Lyrica, but I am newly diagnosed so, don't know if it is the effect on the limbic system or the Lyrica.

And then. . . I have this same problem since I started Lyrica, but I am newly diagnosed so, don't know if it is the effect on the limbic system or the Lyrica.

And also. . . have this same problem since I started Lyrica, but I am newly diagnosed so, don't know if it is the effect on the limbic system or the Lyrica.

Oh. . .did I tell you that ever since I started on Lyrica, my memory has gone to hell in a handbasket!

I am newly diagnosed so, don't know if it is the effect on the limbic system or the Lyrica.

LOL sorry to be a smart-***! we all need laughter to get through. But seriously, I am considering switching from Lyrica to neurontin. Does anyone know if they have the same side effects?

Gentle hugs to all,

Kelly

I felt horrible on both Lyrica and Neurontin, but I generally I thought Lyrica was worse. I am now taking Topamax (I suffer from head pain more than anything else), and depression is a major problem for me. I don't know if it's the meds or the pain or the RSD or a combo of all three that's causing the depression. Hard to tell. In general I think the meds are taking a toll and I'd like to toss them all and get back to my normal self....

Good luck, Sandy

Hello Sandy..
I agree the meds are big butt kickers and caring with them large side affects... The least you can take and still live with RSD and not havingto cross your eyes in pain the better off you will feel as far as meds interaction..As you probably read, I am not taking any meds as I have such a sensitive tummy.. part of me is relieved that I don't have to think about the harshness of the meds on my system.. but then again RSD naked is a killer ... so where we going here..happy medium I guess.. some meds to take the edge off but not to take too much...then again over time the effectiveness of the meds does wear off.... Oh dear!!!

Enjoy your day, Sandy..

KS

This is a real good topic! I too suffer the mental anguish of losing my mind.

Back in the days of working I was a dynamo, never needing to write anything down. I could remember every detail of everything I heard or seen. I even had 3 assistants, one was my personal marketing assistant, the other was the Food and beverage assistant, and lastly was my IT personal assistant.

They had nothing to do because of my uncanny ability to remember dates, numbers, names, everything. So I was always trying to find little jobs for these people to justify keeping them LOL. Plus if I deleted their job it would make it hard for the next directors to rehire an assistant.

The meds DO cause problems with the memory because I was on all the meds that have been mentioned in this thread for a few years. When I lost my insurance and was not able to get anymore the withdrawals were terrible, but as my mind cleared...well it was a whole new world!

I noticed that I could think clearly, and remember some things. My wife, family, friends all welcomed me back to their world as they realized I was mentally back with them. I had no idea I was gone, but they assured me that I was LOL!

Because of this I take the least amount of meds possible, because once I was a bit more clear minded I realized the meds werent really doing the job anyways. I was only hurting a bit more taking only a norco instead of all the long acting morphine, neurotten, and the likes. I learned I have to pace myself, and try not to let the pain get out of hand.

Easier said than done most of the time, but if I watch it I can keep the pain to a 5 or 6 which is bearable to me after almost 10 years of this RSD stuff.

I do dream of having the mental capabilities I used to, but at least am glad that I can enjoy talking with my wife, playing with the grandkids, and building/fixing computers. Things that were almost impossible, or completely out of the question on meds.

Lately I have been thinking about retaking the Ca real estate exam. I took it about 3 years ago and passed even on all the drugs! In fact I finished a 3 and a half hour test in just under 20 minutes LOL!!! The proctor was freaking out when I told her I was done, she told me I should look it over to make sure. I told her I checked it over twice and wouldnt change anything. So it should be a breeze now that im almost on zero pain meds!

I guess the best advice I can give...that is if I was going to give any LOL! Would be to not beat yourself up, just live everyday to the fullest. Dont worry about tomorrow until it arrives, and if you need to take meds to have any kind of a life, then take them and dont let others mentalities about pain meds faze you.

Hi KS,
I think all of us can relate to different degrees what you are talking about.
RSD affects the Limbic Part of our Brain that impacts short term memory. We can be speaking about something this boom we forget what we are saying, or forget a word or grasp for a word to express our thoughts. This is PART of RSD. I also write things down to help remember.
I'm planning on HBOT treatments-it helps circulation and hope it helps in a lot of different areas. I do take meds, but have been able to reduce some meds and eliminate others. I was on a trial study and now take a med that helps me sleep 10 hrs. a night that overall has made a huge difference.
Hope you have a low pain day. Yoour friend, loretta with soft hugs

Keep Smiling,
I am the same way. But after reading side effects of all the medications I am on, I tend to blamed them not my brain. crps has taken so much from me that i don't want to think it has also taken part of my cognition away.. lol

Hoping for a pain free day to all.

I appreciate hearing from you all... I am sorry that you can relate to this...it is like giving just one more piece of ourselves to our RSD illness!!!! I do know one thing for sure is... I feel very lucky and blessed to have you all here with me!!!

Much love, KS