Hi everyone,

I hope everyone is feeling pain free and comfortable tonite. Well I had my nerve block on my left side this time. Two weeks ago i had it done on my right and It never worked. It only felt okay the second day and day three forget it increased pain. Ok so I go to the hospital this morning and i got stuck like four or five times in different places because they said my viens were tiny and they kept spasming. Is that normal with a rsd patient?? Finally a different lady came in and used a needle that she used for kids and got it in but after all that i was in a terrible flare and began to cry omg i was in pain. So finally its time to to go to the OR for the procedure. I get there and every single min someone is tapping me in my arm or doing little things like oops and hit my arm. I mean are they testing me? Do they not believe me..I get the feeling from the dr and the nurses there that they don't believe my pain. I mean why would i go through all this extent to fake it?? So i told him im sorry but it did not work and after you do the other side im not coming back. If it did not work on my right what is the point?? So he seemed frustrated and said let me know how you feel and if not call my partner and let them know and we will take it from there. Something just don't feel right. I feel as if i am always being tested. The nurses that assess me asks me questions like how do you do your hair and they try to sound like they are concern but they aren't..I know for a fact im not paranoid and I know my pain level. Im I soppose to be crying and screaming?? Then he touches my arm and says how does this fell well what do you think. So then I told him about the blotches i saw last night on my arm. I seen them before but it seems that they are only there at night. When i looked earlier they were not there. He took a look and said oh i see little red bloches..When i looked when i got to my room I did not see it. Sorry for going on and on I just feel like im getting no where and all i wanna do is cry. I know im soppose to be resting but im frustrated. Anyone that had any of these problems or has an opinion i would really love it. I am still new with all of this and doing it all alone. If i say something wrong or offensive im sorry in advance. Thanks for reading

Wow...that really stinks. I am so sorry that you have had to go through all of this.

I had a lumbar sympathetic block last Wednesday and my pain increased afterwards. The doc is all "Maybe its RSD...maybe not..." just because the block didn't work. I am really blessed to have family and friends who believe me without question, but I have been through 4 different doctors already and I feel like the first one definitely didn't believe me about the pain level. The second and third seemed unsure but said there was nothing they could do for me. This guy has said he's not sure what else he can do for me and he seems unsure what's wrong with me when he was so sure before the block that I had RSD (and the 5th doctor I saw for an independent medical evaluation set up by work comp said I definitely have RSD too).

Bah...that's all my troubles though. I just meant to say that I understand what you are going through and it totally sucks. Whenever they ask me what my pain level is and I say 8 or 9 they always look at me funny...like I should be crying or wimpering if the pain is that bad. Umm...6 months of that pain EVERY day and you stop crying and wimpering and just deal with is as best you can, right?

Hang in there...this seems like a great place to get support.



Nicole

The worst part of being in pain is nobody can see it. And it is sad when some doctors don't believe it. We go to them to help us and they act like we are intruding in their lives. There are good and compassionate doctors. Don't give up. Do some deep breathing exercises to help calm the nervous system down. Listen to some calming relaxing music. youtube has relaxing music you can download and listen to. Remember they work for you because you pay them.

Yes I noticed when i was doing the deep breathing it seemed to have helped me. Thanks for the input...Last night was a nightmare was in pain and I felt like under my sheets someone lit a fire under their...I was a mess.

Hang in there! I'm sorry the nerve blocks didn't do anything.