Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-05-2010, 07:31 PM #1
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Rrae Rrae is offline
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Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Lightbulb Need Backup! Want to start an SCS/Pain Pump Forum

Hi Friends
I have talked to some of the Admin Re: having access to an easy-to-find seperate Forum for Spinal Cord Stimulators/Pain Pumps.

There have been increasing numbers of threads started and New Members coming on board wanting to talk about these implants. They are becoming more 'common-place' in the medical field of pain management, even to where the Dr's are practically forcing patients to get these. It is raising much concern and many people are becoming more desperate for answers/support/discussion.
The majority of discussion is here on the RSD forum, which is fantastic. Yet, there are more discussions and questions being raised on some of the other forums, such as the Spinal Disorder, Chronic Pain, Peripheral Neuropathy, as these implants transend the barriers of RSD only. When someone comes to the board for advice, it is a 'hit-and-miss' in trying to track down pertinent information, even by using the 'search' feature. It would be vitally advantageous to be able to go to a direct forum for this topic.

I have looked on other pain forums that have specific SCS/Pain Pump topics....but NONE compare to Neurotalk. Most others are spattered with strife and discontent. There is something very special about Neurotalk. The genuine warmth and caring friendship is what NT is all about. I strongly believe this would add yet another wonderful component to NT in which many MANY people would benefit greatly.

In order to get a new forum specifically for these implants, we will need current members to actively participate in discussions to keep it going.

Would you be willing to share your experience? The more people who share, the more diversified this topic will be, success stories, unsuccessful,..... People are VERY hungry for this information!

Feedback? Comments?
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