Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-09-2010, 08:20 PM #1
Courtw84 Courtw84 is offline
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Default check out this web and tell me what u think..

this place is in dallas, and close to me, i need a good dr.... ne one have any thoughts???

www.nrg-unlimited.com
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Old 02-10-2010, 09:57 AM #2
daniella daniella is offline
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Well we are all different but for me this would be a no because I can't have a finger on my rsd area so this would not be for me and why I did not try even a tens unit. If you are able to handle more touching I would ask how many people they see with rsd. It says they deal with pain but what I have noticed even from the PN board I go on is some pains are able to tolerate more massage or touching where I feel rsd does not.
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Old 02-10-2010, 10:59 AM #3
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Default Hi Court

I have to agree with Danielle. This is not a disease to aggravate, you have to challenge when you can but also respect the disease. I had a doctor who sent me to a sportstherapist. He told me he knew all about causalgia, (RSD) as a matter of fact, his best friend had similar fractures as mine, and he wanted to take an aggressive approach. My first instinct was NO, but then I thought well he did have a friend and he does have medical and personal knowledge so give him a shot. Well, long story short, a week later the pain had gone from my lower extremities into my back and I could not walk. So I asked him about his friend....hmmm, he was not pain free, medication free, and indeed had reduced his lifestyle to a major sedentary one. It took me about two months to physically recover from that adventure. The lessen I learned there was A. Follow your first instinct, B. Listen to your body when it is trying to tell you something, and C. Even though people act as though they personally are aware of what you are going through they are not. If this disease is caught at an early stage, and you can endure the therapy, people have been healed from early aggressive action. Best of luck on your choice, Check it out and see how you feel about their plan of therapy, just remember listen to your body, nobody knows you like you do.

Jeanie
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Old 02-10-2010, 11:10 AM #4
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i have been told that they use the other side of your body completely, and avoid any pain areas!
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Old 02-10-2010, 12:33 PM #5
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Default Hi,

Are these Drs. that deal with cronic pain or have they been hired to sell those products. Salesmen really get to me along with Lawyers. They sell themselves instead of believeing in the product that they are trying to sell to people. Lawyers don't even have a product to sell.

If you are looking for a Dr. Get the phone book out and/or get on the computer and pull up Drs. in your area. Also a lot of people here will help you find one. What most of us have learned is that the first one isn't going to be a keeper, a lot of times the 2nd and 3rd aren't.

I did use a tens unit. After I had Thoracic outlet surgery Dr. Sanders got me 2 of them through my insurance. I used them for about 3 years.I had already gone through 3 years of Pt though for the RSD, Fibro, and TOS.

If you get a good PTist that knows their stuff then they can help you without making you worse.

A good Anesteolgist/PM Dr. would be able to help you. Others have found good Drs. in Neurologist but I didn't.

Stick around here and you will learn a lot from everyone that can help you when you do find a good Dr. A good Dr.will listen to what you are saying.

Ada
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Old 02-10-2010, 12:46 PM #6
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I agree with deb no procedure is done to me of any kind without being an anestesologist. I see a neuro but he does more testing and rx meds. As for not being on the area. My rsd pain on the limb part is my inner ankle/foot/calf but when I got my reflexes done and they hit my knee I had horrible inner ankle pain and had to take as needed meds which still did not take the flare away. Nerves are connected. I was suggested acupuncture and they stated they could do it in non rsd area but I still would not. Also I don't like docs who sell items.He can suggest things to me but I am not happy when he wants me to purchase items from him. Is the doc a doc or a salesman. It is not right to me.
To get a good doc I would call a major hospital in your area in their pain clinic dept and explain you have rsd and would like to set up an apt with a pain/anesetesolgist who deals with rsd a lot. I found my best doc even better then the known rsd docs doing that.
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