Hi again. Does anyone have experience/info re:scs and type 2 CRPS? Also, if you had blocks before the scs, was the type level of relief similar? The blocks really help (especially with the burning) so I'm wondering if he type of relief would be similar. Thanks!

I think we've spoke in the past. I'll go back and look thru older posts.
I don't have type 2 RSD per se, but you mentioned 'burning' pain and that's exactly what I battle. constantly
Mine is more of a peripheral neuropathy nerve damage thing in both legs, but one doc did say it resembles RSD.
There never seems to be a clearcut diagnosis on this.

You mention 'blocks' and I'm assuming you are speaking of Sympathetic or Lumbar nerve blocks yes?
I had short-lived relief with the injections. When I did the SCS trial it was very clear to me that it would cover my pain.
The blocks do exactly that - block the pain signals from reaching the brain. The SCS seems to 'cover over' the pain, rather than block the pain. It's sort of like an exchange. You get a soothing tingling sensation in place of the burning.

But don't take my word as gold. Some here with RSD have indicated that the SCS has made their condition spread, even to go bodywide.

At the top of this page there is a link (in the top 'stickie') that will take you directly to the newly formed SCS forum.
It would be great if you also post your question there and as the forum builds posts, you are apt to get more input.
Make sure you click on the link indicated in the 'stickie' post and it'll take you to the forum. If you post your question at the 'stickie', it won't get to the SCS forum and people may not see it.

You bring up a very good question, and I'm anxious to see what input you receive.
Feel free to send me PM and we can talk more details if you want. Has your doctor recommended the SCS in your case?

Rae

I have type II [causalgia] with nerve entrapment,,I was only given 2 blocks,,I did not get the relief that others did,,I was told that if your still in smp the blocks will help,but if you have progressed to SIP then the blocks would aggravate your symptoms,,,either way,, from what your saying about getting relief from the blocks,,the Drs will probually say you are a canadate for a successfull scs,,,,,you;ll get at least a week or more trial,before the inplant , to see how you react,,good luck and may the lord bless you,,,,,,,,,bobber

Thanks very much! I'm not familiar with sip/smp...is that like stage 1 vs stages 2-3? I'm still stage 1 with inset 8/08.vAt this point, one of my pain management drs (the one who does my stellate ganglion blocks) is recommending scs. I'm strongly considering it and I'm getting a second opinion in a week or so. Thanks again.

Thanks! my rsd is in my arm/hand so i get stellate ganglion blocks stellate ganglion blocks and they help a lot!! My pain management dr is recommending it forlong term relief since the blocks only help for a couple of weeks. I'll post the question as you suggested. Thanks again.