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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   CRPS in only half my big toe! (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/114655-crps-half-toe.html)

birchlake 10-25-2011 12:01 PM
Quote:
Originally Posted by mnp2011 (Post 818314)
ADDITION TO ABOVE: My toes are also not hypersensitive to touch (thankfully). My CRPS reaction happens after 10-15mins of walking then, 1. heat, 2. redness, 3. swelling, 4. pain. Then I put my feet up by lying down, and it all calms down again. Pain, redness, heat, swelling all dies down and stops.

The Amitriptylene extends the period before triggering the reaction, and the redness and swelling doesn't go up so far, but still as bad in the actual toes.

I have now got two appointments booked for this coming week with CRPS specialists and I'll report back with what they say and suggest.
Wow.......your symptoms are very similar to mine. It isn't terrible when sedentary, but after about 15 minutes up and around...maybe 20, it gets very aggravated and I also get the heat, red color, swelling and pain.

Too weird! We have to stay in touch here and support each other. I'd love to be part of your blog.

mnp2011 10-25-2011 12:21 PM
Quote:
Originally Posted by birchlake (Post 818364)
Wow.......your symptoms are very similar to mine. It isn't terrible when sedentary, but after about 15 minutes up and around...maybe 20, it gets very aggravated and I also get the heat, red color, swelling and pain.

Too weird! We have to stay in touch here and support each other. I'd love to be part of your blog.
Yea seems very similar! I'm just putting together all my research and case notes & photos etc for these appointments.

Once I've been to see them I'll start getting a blog together specifically for CRPS in the toes, with links, articles, photo's and more detail of my case. I'll try and set it up with several accounts so you can just add what you like as and when. Then that will hopefully get some more feedback from others and their experiences/treatments specifically with this type/area of CRPS. Well that's the idea anyway! Any other suggestions are very welcome :)

Russell 10-25-2011 04:51 PM
My RSD started in my left hand/wrist but spread to my left foot and toes. Does that count? (lol)

mnp2011 10-25-2011 05:14 PM
Quote:
Originally Posted by jimbo (Post 818462)
My RSD started in my left hand/wrist but spread to my left foot and toes. Does that count? (lol)
I think that counts! **

Russell 10-25-2011 05:38 PM
Quote:
Originally Posted by mnp2011 (Post 818476)
I think that counts! **
In that case I'll chime in on your blog... :Writting:

birchlake 10-25-2011 06:17 PM
Jimbo, you're in! I really like the blog idea. We can all benefit from sharing information, symptoms, meds, therapies, etc!!

Russell 10-25-2011 06:41 PM
Quote:
Originally Posted by birchlake (Post 818498)
Jimbo, you're in! I really like the blog idea. We can all benefit from sharing information, symptoms, meds, therapies, etc!!
Anytime you want me to babble on let me know...:Music 2:

birchlake 10-25-2011 07:03 PM
Hey Jimbo, isn't "babbling" a kind of therapy? I think it should be in that category. I am convinced that there is absolute value here!

I'm excited (and so are my toes) to find others with at least similar symptoms, affected area, etc.

That is the BEAUTY of this forum. :D:D

Russell 10-25-2011 07:33 PM
My wife tells me if I didn't have my sense of humor I wouldn't have any sense at all...:Wave-Hello:

mnp2011 10-26-2011 03:29 AM
Quote:
Originally Posted by jimbo (Post 818525)
My wife tells me if I didn't have my sense of humor I wouldn't have any sense at all...:Wave-Hello:
Keeping a sense of humour is really important and I have to admit I've been struggling with that. I really kind of sunk in these past days how long-term this CRPS can be. I guess before I thought it would be something that would be easily fixed like a sprained ankle or something.

Still, got a few specialists to see so hopefully they'll come up with some bright ideas to sort it out a bit more.


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