Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-15-2010, 04:35 PM #1
Kakimbo Kakimbo is offline
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Join Date: Sep 2009
Location: Galena, MD
Posts: 280
15 yr Member
Kakimbo Kakimbo is offline
Member
 
Join Date: Sep 2009
Location: Galena, MD
Posts: 280
15 yr Member
Default Just fired my Pain Doctor!

And i feel Great!

I recently got accepted at Johns Hopkins in Baltimore, but have not been seen yet. So, I had to drive three hours to see my current PM only to be seen for five minutes (for real!) and have him yell about how I am not improving and I am causing my legs to cripple. I have a torn hamstring (that his nurse diagnosed, not him.) Piriformis Syndrome, bursitis and an inch of atrophy in my RSD leg...not to mention the RSD. He made me walk, showed me how I walk (basically imitating me, but with a sour look on his face, his sholders slumped over and making me look like some freakshow)....Mocking me. I complain to him about my meds make me sick (went out for an expensive dinner for Valentine's Day -- took two bites and ran for the bathroom. Didn't make it!) So, I humiliated myself in public and didn't get to eat my forty dollar dinner! He won't prescribe anything for the nausea because my Neuro says that it gives me permanent twitches and tics. I begged. He FINALLY gave in.

I have tried to master each exercize i am given. Keep meticulous (sp?) records and I feel I am the perfect patient. What gives? Oh, plus we have over two feet of snow on the ground and more to come tonight.

I don't think many of our doctors have any clue what we live with. Just a little understanding and concern, please......OH, the absolute best part.....said he will take me off of all meds unless I start walking right!!!!!!!!!!!!!!!!!!!!!!!!!!! OMG! (can I say BIGGER flare!) I am mortified. Gee, thanks Doc! Not sending you a Christmast card this year!!!!!
Sorry to rant, just needed to get it off my chest.

Thanks everyone for listening!

Kim
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Last edited by Kakimbo; 02-15-2010 at 05:04 PM. Reason: omitted facts
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