Hi everyone,
Sorry that Ive not been here in awhile but there is a good reason for that. The day after Christmas we were in a really bad accident & totaled the car. The other bad news is that the same leg that is effected by crps is now also fractured & the doctors cant treat it because nothing can touch my leg. The pain is unbearable & the pain doc that Im seeing wont increase my pain meds. He only increased the perocet by 1 more a day----he said that the fracture would be better by next month ( March) even though my ribs havent healed since Sept. Im still trying to get into another pain clinic but he wont sign the discharge papers, so Im still stuck seeing him. I just really hope that he sings it soon because I really dont know how much longer I can take this pain. Its so hard to get out of my hospital bed now that I cant even tell you.
Just thought that I would let ya'll know why Ive not been on & I will try to get back here more often. Hope that ya'll are doing good & that your pain is being managed as well as it can be. Hope to hear from you soon. Take care.
Janet

HI Janet,

So sorry to hear....

Hang in there! I don't know what road lies ahead but I wish the best for you!

janet,
so sorry to hear about the accident,,but at least everyone is ok,,It pains me to even imagine a fractured leg on the most affected side,,,I hope and pray to God that he will not allow a spread,,you are in my prayers ,,I know with me haveing RSD II causalgia,,if i even bump a finger[not kidding] rsd runs right there,,this is a nightmare,,My hope is in the lord,,,,,I trully will pray for a miracle to happen for you,,,,,,,,,bobber

Hi! I am new to forum. But i wanted to wish you well.. I am sorry for your suffering and wanted to wish you happy thoughts.. And hope that you will feel better soon. You will be in my thoughts and prayers..

hopefully your new friend
Barbara

Hi Janet, I am so very sorry about your accident and injury to your bad leg.
Are you on some of the newer meds that work on nerve pain like cymbalta, an antidepressant, lorazepam, an anti-anxiety med, and a sleep pill, as restorative sleep lessens pain.
This sounds like a nightmare. Will your car insurance help you, or the other car's insurance. Do you need an attorney if it was the other persons fault?
Would light massage help? or qualified rsd therapist, psysical. car insurance should help you in seeing a psychiatrist. My psychiatrist is wonderful, he also is a neuro and pharmacologist.
Did you have an mri or further testing after the accident? Were you hospitalized? I couldn't put up with a Dr. not caring for my pain needs. You deserve to have balanced treatment. I personally benefit from psychiatry help.
Good you have you back on NT. Let us know how you are coming along.
Your friend, loretta with big soft hugs

Sorry to hear about the accident. One thing that makes me more angry than anything in this world is a doctor who will not control the pain of a chronic patient, especially one who's injured limb is infected with an incurable condition like RSD! Why do you need this doctor to release you? If it were me I'd release myself if push comes to shove. I'd explain to this doctor that he is failing to control your pain which is a direct result of a chronic condition and a injured limb in an accident and that you demand the pain to be controlled now because it is your duty. If you can't speak up then get a loved one to tell him. If you get no results then tell him you are filing a complain against him and then move on.
I hope you get relief very soon!

Dear Janet,

I agree with Jim, you or a loved one has to take a stand against the doctor who is not providing you with an adequate level of care. Only you can take the next step in trying to take care of yourself and obtaining relief from your pain. Don't let someone else rule your life like that!! And to ensure that what happened to you doesn't happen to someone else, report that doc to your State's Board of Health.

There are caring people out there that will take good care of you - you and your family just need to be persistant and find them. Good luck and take care, XOXOX Sandy

Dear Janet -

I agree that it is unconsionable for a doctor to be able to hold you hostage, although I understand the theory of any release law: to make sure that two or more pain doctors are not prescribing meds for you at the same time without the knowledge of each other. That said, the purpose of the law cannot be to allow a doctor to hold his/her patients hostage.

And what's insane is that you have an untreated broken leg, which may heal improperly (or worse, cause the release of marrow into your bloodstream) simply because this bozo doesn't know how to administer continuous regional anesthesia that could do just that. From what I understand, there is a very good pain group at Vanderbilt, based at the Vanderbilt Medical Center in Nashville http://www.vanderbilthealth.com/pain-center/ with a satellite faciliity in Franklin TN 615-764-0080, if either location would be convenient for you.

If I were in your shoes, I would try contacting the Vanderbilt Interventional Pain Center in Nashville at 615-322-4311, and if nesessary ask to be connected to a social worker to see what can be done about your situation. Just looking at their website, they appear to be doing some cool stuff:

Our Services

The Vanderbilt Interventional Pain Center provides diagnostic and therapeutic outpatient services for individuals experiencing pain.

Patients seen at the center may be facing a number of pain-related issues such as chronic back and neck pain, cancer-related pain and neuropathic pain resulting from diabetes.

A new patient visit starts with a full assessment, including medical history, and then a plan to alleviate the pain is formulated, usually starting with the least invasive procedure. However, the biggest hurdle is often finding the source of the pain, which can be accomplished through precise diagnostic nerve blocks.

The center is also involved in research activity. Dr. Sukdeb Datta, director, has a focus is on a molecular neurosurgical approach and is funded through a grant from the U.S. Department of Veterans Affairs. Rather than treating pain with narcotics or by cutting nerve pathways, these techniques specifically target the neurons that transmit pain signals.

The center partners with specialties like neurosurgery, orthopaedics, psychiatry and physical therapy, with the goal of providing a full spectrum of pain management services. . . .

http://www.vanderbilthealth.com/pain-center/15094

If they can't be of immediate assistance, I would just go ahead and call the State of Tennessee Board of Medical Examiners today at (615) 532-3202. For your reference, its address is:

227 French Landing, Suite 300
Nashville, TN 37243

http://health.state.tn.us/Boards/ME/

Good luck!

Mike

I'm actually an "oldie," just haven't been in for a while (and am one of those who had to re-create a profile after the server crash a while back). I'm SO sorry to hear of your recent accident. I know that just having a cortisone injection this summer in my knee caused a major flair-up, so I can't even imagine how someone who calls themself a chronic pain doc would be in such denial.

I'm with many here in advice- DUMP the bum!!! Perhaps if you have another pain doc that you have picked out, you can get the current fool ...er doc to "transfer" your case rather than release you. That way no one can think you are actually trying to get "double care/double meds" since the two docs would be in contact (the old one would at least see that you are simply "getting a second opinion," which I believe in most states is your medical right -at least it is in California). Good luck and try to keep your spirits up. I'll add you to my prayers too.

cant agree more to what all have said esp. Loretta. She has some really good points. You are in our thoughts and prayers. Be your own advocate-no one else knows what you are going thru. GET HELP-Fondly-Carol