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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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I just recently started to capture some video and plan to use it in a video blog, that way the stupid doctors can have proof of my bad days and good days online whenever they want. An internist from Senator Rockefeller suggested it to me while I am in the process of getting my SSDI. I hope to have some up before the end of the week...
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Co-Administrator
Community Support Team
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That's very interesting.
It would be great for videoing the obvious color changes & swelling, rashes etc, & documenting those... Good clear pictures & color/contrast will be important. Will you be able to set it up so there is some amount of privacy ie doctors/people would have to log on or join ? vs anyone & everyone seeing & knowing your health issues? Just thinking of your safety & privacy.
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Personally, I am wrestling with that...I would love to have it be public and let others see my day to day struggle. I don't know how it will effect my case. I may let them have my screen name for the site and only them until my case is closed. I didn't think I would do a good job, but it's working out great so far. The videos are published private, but I am still writing a blog about it for everyone can see.
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"Thanks for this!" says: | Jomar (02-25-2010) |
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