Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-26-2010, 04:55 PM #11
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To be specific
The word causalgia is a greek word meaning [ " To Burn" ] " More at Caustic " [ meaning ,The burning feeling is more like a acid burn than a burn from a flame,,,,
Now the condition of Causalgia { not the meaning of the word} is a persistant severe burning of the skin, usually following injury to a peripheral nerve
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Old 02-26-2010, 07:57 PM #12
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Originally Posted by dreambeliever128 View Post
RSDS was called Causalgia up until 1927. It has had several names over the years. Shoulder-hand syndrome was another but there were more.

Not only can the Drs. not treat it, they don't know what to call it.

Ada
AMEN to that!!!
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Old 02-26-2010, 11:25 PM #13
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I think that the lack of diagnostic unity amongst physicians, the lack of standardization in meaningfull tests (or training) to diagnose such, compounded by the striking lack of patients available in-office with CRPS I or II for all physicians to evaluate and miseducation of most physicians leads to a greater lack of understanding on what to do with us. I speak from both a patient and clinical perspective...
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Old 02-27-2010, 12:07 AM #14
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it s pretty frustrating that only certain drs can treat us.. it makes me feel like i have the plague or something. its nerve racking.
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Old 02-28-2010, 12:05 AM #15
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Originally Posted by babs74 View Post
it s pretty frustrating that only certain drs can treat us.. it makes me feel like i have the plague or something. its nerve racking.
Barb, Don't let it get you down. Be happy that there are at least some physicians out there that have a handle on what we deal with. Having speciaists deal with your specific issues is a good thing otherwise you would have your dentist dealing with a yeast infection...
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Old 02-28-2010, 04:58 PM #16
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Originally Posted by Dubious View Post
Barb, Don't let it get you down. Be happy that there are at least some physicians out there that have a handle on what we deal with. Having speciaists deal with your specific issues is a good thing otherwise you would have your dentist dealing with a yeast infection...
thats funny. But true. Its just the waiting to get into those specialists thats nerve racking. Now im just waiting for my gp to call with my appt. In the meantime keep getting a tingle in my right leg and fear a jump from left arm and shoulder and right shoulder to right calf. Hoping it work like that. Praying to be exxact. On to another ? does anyone ever been doing something then forget where there are and what they where doing for a brief moment? been happening to me alot lately. So curious. or not reconize someone u should know?
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Old 02-28-2010, 08:48 PM #17
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Default Dr. Hooshmand

Just happen to run by this, I have heard many others speak of this site and this is what I found that best describes the term and condition at its best. Think about it, it is just common sense that when a disease such as cancer progresses to a higher stage the chance of remission goes down. I personally am fortunate to have both, CRPS 1 in left foot, and Causalgia major in right, and it has spread to my whole right leg. The right side is definately more challenging for me and the doctors to deal with. As a matter of fact, right now we are not dealing with the right at all, we are doing injections and possible surgical intervention to stop the left foot.

God Bless you all, as I have said, they can call it whatever they want, pain is pain.

H. Hooshmand, M.D.

Causalgias are divided into two forms:
1. Causalgia major involves peripheral nerve injury with electrical "crosstalk" (ephapse) that causes severe hyperactivity of sympathetic system (hyperpathia, vasoconstriction, and movement disorder). The major form is severe, usually caused by injury with high velocity sharp objects (e.g., butcher's knife), vibratory component major trauma (e.g., bullet), or high-voltage nerve lesions (electrocution).

2. Causalgia minor involves the same principle as causalgia major, but milder injury, e.g., injury to the dorsum of hand or foot, nerve root contusion, patient falling from a height on gluteal region resulting in "guillotine" effect, bruising of nerve root caught at the narrowed intervertebral foramen.
The difference between the two categories is a matter of degree and severity. To classify causalgia as an independent illness is artificial, and causalgia is nothing but a sever form of RSD.

In this severe form of RSD, the course of the disease is quite accelerated from stage 1 through 4 in a matter of weeks or months. S. Weir Mitchell230 in 1872 first reported rapid development of atrophic changes in the skin, nails, and soft tissues of the extremity in a matter of days to weeks.

Whereas in RSD of disuse the extremity is cold, in ephaptic dystrophy the thermography reveals in the distal portion of the extremely cold extremity that there is an isolated hot spot that points to the area of scar formation and ephaptic peripheral nerve dysfunction (Figures 4-6). In this area the vasoconstrictive capability of the sympathetic nerve is paralyzed, and there is a topical hot spot. This hot spot can be appreciated only by thermography.
This type of RSD is quite painful and very difficult to treat. It demands multidisciplinary therapy as well as early diagnosis. The ephaptic form is characterized by increased heat emission at the area of ephaptic lesion (electric short). As the condition becomes chronic, the distal portion of the extremity involved and the contralateral extremity becomes cold, but the ephaptic spot stays hyperalgesic and warm (Figures 4,5, and 6b).

Causalgic Pain
Sunderland363 in 1978 succinctly defined causalgic pain as follows:
1. Usually pain occurs after the injury to a nerve trunk.
2. The severity of the injury to the soft tissues other than the nerve does not play a role in the severity of the pain.
3. The pain is spontaneous, severe, and quite persistent.
4. There is a markedly lowered threshold for aggravation of pain. This is the case in all RSD patients, but it is more exaggerated in causalgics. So even a breeze over the skin or the touch of a bed sheet or a change of the environment or a family argument and aggravation can markedly aggravate the pain. This feature of emotional aggravation is common to all RSD patients, and it is nothing but the role of the frontal lobe and the limbic system in aggravation of hyperpathic pain.
5. The pain is felt distal to the proximal nerve injury, i.e., in the hand or foot. This is typical but not invariable. The pain does not necessarily have to be a burning type of pain, and can be described in many other hyperpathic forms.
6. Sunderland established the requirement that the pain should be present at least 5 weeks. However, depending on the severity of the injury, the pain can develop in a matter of days or weeks. What happens to an extremity in RSD of disuse in a matter of several months can happen in a matter of a few weeks to a causalgic patient.

In no case of RSD is the pain so severe, so intolerable from burning, seering, aching, tingling, lightening, stabbing, crushing, to a combination of the above, without burning pain in a matter of a few hours to up to 7 to 10 days in close to 90% of the cases. However, it is not unusual to see some patients who develop the pain as late as 3 to 4 weeks after the injury.

Major causalgia is due to scar formation of peripheral nerves but has a component of high-velocity or high-vibration injury in its etiology. This is usually seen after bullet injuries or high-velocity sharp objects such as a butcher knife or surgical instrument injury. This is typically seen in war injuries, but it can also be seen in civilian trauma due to amputation of an extremity or industrial injury to the extremity. It is not uncommon in electrical injuries. Drilling steel against titanium in the aerospace industry causes high-frequency vibration and makes the patient more susceptible to causalgia.
The difference between the minor and major causalgias is a matter of degree and severity. For more detail on causalgia, see Chapters 1 and 12.
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Old 02-28-2010, 10:13 PM #18
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As with every "new and improved" author, there is a new flavor and acronyme that arises to describe essentially a variation of the same theme. Call it RSD, causalgia, CRPS I, II or SSTROD (***** stuff that ruins our day - okay, so I made it up), it's all the same!

Like Wilbyfree said, "pain is pain" no matter how you describe it. Different authors over the last 100 years have described essentially the same syndrome, with insignificant clinical variations, so the classifications, catagories, sub-catagories, types, sub-types, etc, etc, is really just a semantical and rhetorical exercise that goes absolutely nowhere in advancing anything! Schwartzman labeled it best in his hallmark paper a few months ago, stating that he simply wasn't going to deliniate between CRPS I or II. Simply just leads us back to where we are at - it hurts!

I think I need a norco now....
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Old 02-28-2010, 10:18 PM #19
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Beautifull and well denoted post
Ive got the nerve entrapment in the heel from a cut,,Its ironic about the vibration,,when i first got it One thing i remember that stood out that I knew something was terrible wrong,, Not only did the pain was out of the ordinary to the size of the cut,,but The vibration when my foot was on the foot peg of my motorcycle , created severe pain,,,my foot doesnt like vibrations at all ,thats why I cant use the tens unit,and I fear the SCS would be a Vast mistake,,,bobber
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Old 02-28-2010, 11:24 PM #20
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Quote:
Originally Posted by Dubious View Post
As with every "new and improved" author, there is a new flavor and acronyme that arises to describe essentially a variation of the same theme. Call it RSD, causalgia, CRPS I, II or SSTROD (***** stuff that ruins our day - okay, so I made it up), it's all the same!

Like Wilbyfree said, "pain is pain" no matter how you describe it. Different authors over the last 100 years have described essentially the same syndrome, with insignificant clinical variations, so the classifications, catagories, sub-catagories, types, sub-types, etc, etc, is really just a semantical and rhetorical exercise that goes absolutely nowhere in advancing anything! Schwartzman labeled it best in his hallmark paper a few months ago, stating that he simply wasn't going to deliniate between CRPS I or II. Simply just leads us back to where we are at - it hurts!

I think I need a norco now....
I will second that with a Vicodin.....this took alot out of me today trying to find something to describe this condition and the variations of it. Have a good night all, and wishing you a pain free day.

Jeanie
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