I am so sorry for your son and for you because I know how it hurts a mother's heart to have her child hurt. My daughter is 15 and was diagnosed when she was 12. She had the blocks one a month for 6 months but they did not help her. She has ketamine epidurals about once a year and those really keep her stablized. Her doctor will not do the SCS until she is done growing. He said the leads will move as will the battery pack if she is not finished growing and the result will not be the same and can cause increased pain or pain in other places. I know that time frame is later for boys, too.

What a great son to have such a supportive mom! He will need you to be there for him as time goes on. Hang in there and pm anyone of us if you need to.

Please email at spudsailor@aol.com- I know a women whos son is now pain free after going to the Mayo clinic in Boston- please email me for more info- i can put you in direct contact with her!!!!!!!!!!!!!!!!!!!

Debbie

Welcome to our crps family.. I have crps in left arm and both shoulders.I am sorry about your son.. Its awful he has to suffer at his age.. well any age to be honest.. He is very lucky, when i had the nerve blocks they worked for 3 days for me..It took over 5 months for a diagnoses for me..I got the run around.. So be patient.. If they help him.. Try them.. I know someone who they really worked for.. She didnt go with the spinal cord stim.. They wanted her to and she had crps type 2 due to a surgery.. they helper her alot. She had her hand locked in fist position.. The Spinal Cord stim is repeated surgerys.. and he is awfully young for that.. Its going to be hard on him.. Just see what his drs want to do.. Good luck.. were all here for you if you need us.. and him as well