Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 02-28-2010, 01:22 PM #1
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
Default

Hi I did not have an injury either but have RSD and PN. It is very important though to rule out other conditions. I have had multiple mri,emgs,xrays I mean I could go on. Can you see a pain specialist/anestesolgist? What state do you live in? Maybe someone could suggest a pain doc who deals with RSD. If not I would call a major hospital or teaching hospital in your area there pain clinic and explain you have rsd and want to see if they have a pain specialist who deals with that. Have you had any blocks? Are you on any meds?
daniella is offline   Reply With QuoteReply With Quote
Old 02-28-2010, 03:44 PM #2
Mycah's Avatar
Mycah Mycah is offline
Junior Member
 
Join Date: Oct 2009
Posts: 84
10 yr Member
Mycah Mycah is offline
Junior Member
Mycah's Avatar
 
Join Date: Oct 2009
Posts: 84
10 yr Member
Default

Quote:
Originally Posted by daniella View Post
Hi I did not have an injury either but have RSD and PN. It is very important though to rule out other conditions. I have had multiple mri,emgs,xrays I mean I could go on. Can you see a pain specialist/anestesolgist? What state do you live in? Maybe someone could suggest a pain doc who deals with RSD. If not I would call a major hospital or teaching hospital in your area there pain clinic and explain you have rsd and want to see if they have a pain specialist who deals with that. Have you had any blocks? Are you on any meds?
Thanks daniella,

Yes, all that other stuff has been ruled out (post to bobber). I live in Arizona and loretta from Arizona has been kind enough to suggest some things. I just started at a pain clinic last week and they are familiar with RSD. Began epidurals for neck and lumbar last week. No blocks yet.

The only meds I've been on are Lyrica (didn't help and stopped it) and Trileptal (helped with back pain but made me so stoned I couldn't function - stopped it, thought it caused the burning too but I'm still flaming). Psych people have tried three anti-depressants on me (pristiq, elavil, trazadone) and the only thing they did was make me burn more. I'm popping xanax a lot lately to help with back pain. Last time I saw neuro he said he wanted to try me on gabapetin (sp?) so I'll see what he has to say tomorrow.

I've learned that I'm not a very patient patient and want things fixed. And because sometimes it takes months to see specialists I like to have options lined up for the future.

Thanks again for your help.
Mycah is offline   Reply With QuoteReply With Quote
Old 02-28-2010, 05:18 PM #3
babs74's Avatar
babs74 babs74 is offline
Junior Member
 
Join Date: Feb 2010
Location: Ottumwa, Iowa
Posts: 89
10 yr Member
babs74 babs74 is offline
Junior Member
babs74's Avatar
 
Join Date: Feb 2010
Location: Ottumwa, Iowa
Posts: 89
10 yr Member
Default quick fix

wanting a quick fix is fine, but u hoping for a miracle hun.. we all do.. gabapentin works for some.. im allergic and lyrica works for me. most meds like lyrica and gabapentin u have to take a while before they work.. so give it time.. i hope u dont have crps like the rest of us. it sucks.. but if u do i hope u good treatment with the right drs..its going to be a long road.. so patience is something your going to have to learn. and we on here will all help you here. thats what we are here for.. anytime.

__________________
Barbara
babs74 is offline   Reply With QuoteReply With Quote
Old 03-01-2010, 11:21 AM #4
Mycah's Avatar
Mycah Mycah is offline
Junior Member
 
Join Date: Oct 2009
Posts: 84
10 yr Member
Mycah Mycah is offline
Junior Member
Mycah's Avatar
 
Join Date: Oct 2009
Posts: 84
10 yr Member
Default

Quote:
Originally Posted by babs74 View Post
wanting a quick fix is fine, but u hoping for a miracle hun.. we all do.. gabapentin works for some.. im allergic and lyrica works for me. most meds like lyrica and gabapentin u have to take a while before they work.. so give it time.. i hope u dont have crps like the rest of us. it sucks.. but if u do i hope u good treatment with the right drs..its going to be a long road.. so patience is something your going to have to learn. and we on here will all help you here. thats what we are here for.. anytime.

Thanks babs74. In my darkest painful days I have tried to think what lesson am I to learn of this...and what do you know, it always comes back to patience.
Mycah is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
The so obvious scotch1 Parkinson's Disease 0 04-28-2008 07:59 PM
about Post Concussive Syndrome, Mild Traumatic Brain Injury & other Brain Injury pono Traumatic Brain Injury and Post Concussion Syndrome 0 06-24-2007 10:11 PM
Obvious... colombiangirl1 Creative Corner 0 03-16-2007 01:13 PM


All times are GMT -5. The time now is 10:58 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.