Hi I never know which board to post here or PN since I have both but this seems like maybe RSD symptom. Anyhow my worst of the pain is the left inner ankle/foot/calf but it also spread to a lesser degree in the right. Well last week I tripped but did not fall or twist anything but I am sensitive like a touch I can't tolerate other then by myself. Anyhow since then my right leg is the worst it has been in 3 years and feels like my left. The calf/behind the shin is so tight and the pain goes down to the inner ankle/foot. The calf feels like it is stretching and no circulation. In both legs from the knee to the feet I am getting the tingles/pin feeling.The feet again are feeling like if you were in the snow and then it was defrosting plus they were run over. I had this in the feet before but not from the knee to the feet. I am really scared at this new developing issue and how much pain I am in especially since I was making slow progress. I have had all the diagnostic tests and seen many specialists. I still feel like their is a missing piece with the combo of my eye pain and head pressure but it is not a migraine and no auto immune. I am not sure who to go to other then another pain doc but I am very concerned and in so much pain.I have seen a few rsd pain specialists and had a few procedures like blocks etc that increase my pain so now am back on non narcotic meds like neurontin. It is hard to know with my right leg for ex if I did something to it or this is RSD or PN. Can anyone give me any insight? Thank you

You don't mention whether you are mobile or not. Do you have a GOOD PT? That you trust and that knows RSD? You might want to try to work in a warm water therapy pool with a therapist. Or even by yourself to get rid of that awful frozen pins and needles feeling if you can tolerate it. Maybe moving your limbs (gently!) might be half the battle in getting some circulation back to your legs and having them feel better.

I've have a lot of trouble with my legs as far as spread and pain and burning and swelling, etc. But because I continue to walk a lot I've managed to keep my symptoms somewhat controlled. That, and lidocaine infusions have helped too, I think. I just can't get them often enough, close enough together, to really keep me comfortable all the time. And they only work about 30% of the way. But they are better than nothing.

So sorry for your discomfort. And I can identify with the fear of not knowing what specialist to call. I really hope you feel better soon.

XOXOX Sandy

Do you have color changes where you feel the pain?

Are the areas always discolored or do they look normal?

I've been helping Bobber with his ankle, and he is finding that the magnesium in cream form is working for him.

The cream is by Kirkman:
http://www.kirkmanlabs.com/ViewProdu...ct_ID@124.aspx

Usually tight muscles/cramps, or twitching can mean low magnesium. If you try oral and are not satisfied, it could be because the circulation to the extremities is poor and the magnesium cannot get in to dilate the smaller vessels.
The cream bypasses that problem. Once open you can then go back to the oral.

Kirkman is 100mg/gram...a measuring device is given. Don't exceed 400mg/day.

Also if you are low in Vit D, get that tested, and fix that. It can do wonders for pain.

Also...if you skin is getting stiff and tight...(not the muscle itself) you need to consider, scleroderma as a possibility.

Hi thank you both I really appreciate it
Sandy I have done PT before with a physical therapist. Part of which was at Cleveland Clinic so they are aware of rsd. I had a very bad experience so have been keeping mobile and walk every morning but have a hard time with range of motion and it is so painful.I know how key it is for me to keep moving and it has taken 3 years to get to the amount I can walk. I had lidocaine infusion and it increased my pain unless it was a fluke. I am still thinking of ketamine though
Mrs D no color change or swelling. Actually they don't look swollen but at times they feel it or may be to a degree but nothing huge like most get.It has the feelings I described but also frozen at times. I take magnesium glycinate and a higher dose. My D level is good.
I know in my heart that a piece of dx is missing. RSD in the eyes is still not very well known. The leg pain and what part is PN and what part is RSD they still are not sure.
What is depressing is I have seen so many doctors and though my last pain doc is the best I don't feel confident in any of them or cared for. There is just too much going on in my body for someone so young to not have a why. Ok enough of my rant thank you