NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Feeling Good (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/116169-feeling.html)

Dear Catra,

If you don't learn how to take it easy and ensure that you get the rest you need, you may make yourself sicker. I doubt some Benadryl's going to stay in your system past 8 hours.

Perhaps one of the reasons I got so sick and had to finally leave work is because I was working so hard and I was stressed out. I made myself sicker, and then couldn't rally back. (The stress of dealing with insurance companies didn't help either!) It stinks being home, I HATE it.

Restorative sleep is really important. And taking care not to overdo it. Getting a scooter to take some pressure off your feet sounds like a great idea.

Please take care of yourself. XOXOXO Sandy

Quote:

Originally Posted by catra121 (Post 630753)

Let's see...I am take 4 medications: Lyrica, Tramadol, Meloxicam, and Doxepin. I know one is an NSAID and the others are for the pain. The doc upped the dose of Lyrica from 150MG a day to 225MG and I definitely saw a little improvement (not a lot...but a little) from that. I also have Lidoderm patches which help a little.

As for sleep...I will try the Benadryl. Part of my problem is my work schedule. It's not uncommon for me to close the building and then be back to open the next day and I never would have a "regular" sleep schedule with retail hours, so I have always been afraid of taking stuff to sleep because what if it works too well and I don't get up for work. But I'll try the Benadryl on nights when I don't have to be up early and I will see how it affects me. Thanks for the suggestions.

I have to say that this week has been hard. A week after being back to "regular" work and I feel like someone beat the crap out of me. But I just grit my teeth and keep moving because I know the alternative is NOT what I want. I am really hoping that getting the TENS unit will help a lot. I used a wheelchair and crutches for a couple of months while trying to get a diagnosis and unless I just cannot do it any more I don't want to go that route because...well...it will be a heck of a lot harder to be "normal" and "myself" in a wheelchair or scooter. But I am also a realist an know that someday I may not have a choice in the matter. But I want to put that off as long as possible.

Thanks again for all the kind posts. Hope4thebest...thanks for your support and for the prayers. I know I will need them. And I love that saying Kathy. I run a cross stitch board online and we are trying to create a stitched chart with that saying on it, "Live isn't about how to survive the storm, but how to dance in the rain." How funny that you would post that hear. Really is the truth though.

I pray that everyone with this terrible, awful condition gets the support and love they need to continue on. If I didn't know that there were others struggling with what I am and know their stories...I don't think that I could do what I do each day. I am a stubborn little runt, though, and I just am determined not to give in. Big hugs to everyone!

I will try not to overdue it...sometimes I wonder how I could with the amount of pain that I am in...but I know that I do sometimes. The doctor I am seeing had to do a lot of pushing in the beginning and at the last visit sort of had to pull me back because I think I wanted to do too much too soon.

I guess I get sort of depressed when I think about all the things that I will never be able to do that I am trying to cling onto the things that I still can. I too HATE being home and not being active in some capacity. Outside of work though I have never been a really active person. My hobbies are pretty much cross stitching, reading, and fishing. I always liked to do a little hiking and sightseeing with my boyfriend and I LOVE to travel. I am so glad that I was able to go to Greece with my boyfriend's family last june because I got injured at the end of July and I don't think I will be able to do something like that trip to Greece again.

But then I know I need to keep an open mind. Perhaps a scooter would be a good idea...but I'm not ready for that yet. But I will check out that site for the scooter and keep it bookmarked. With the amount of pain...I could get to the point of needing one sooner rather than later. But I'm not there yet.

I hope that getting the TENS unit will help relieve the pain on a regular basis and that that will help me sleep better. I keep trying new things, different types of heating pads, different socks, different shoes, etc to help with the pain. I will get there eventually. I joined the park district fitness center so I can continue on with PT on my own now that I am down to just one day a week of PT.

Anyway...thanks again.

And Barbara...you don't sound stupid. With all the pain and suffering we endure, you need to fight for the things that make you better emotionally and mentally just as much as the things that make you better physically. I am tired of fighting too...I think most of us could say the same thing. Good luck to you!