Hello,
Does anyone else have the inability to regulate their body's temperature ?
It seems I'm either freezing cold or sweating like I'm in a suana. Is this a product of RSD or could it be something else. I've been battling RSD for about 3-4 years now and can't seem to get lasting relief (from pain meds, etc). Now this has started about a month or so ago. I just seem to kind of get used to everything that goes along with this and then another thing gets added to the list of symptoms ?
Sincerely,
Tony

Welcome Tony.. We have a great family of caring supportive people here....Yes... I am in the same boat and we have had many posts here that describe exactly this..our temperature regulator is off..way off..In a matter of seconds I turn to water..my whole body..I first feel a hot rush and bam... I am drenched. More times I am sweaty than cold but the cold does happen from time to time.. We ahve talked about this here before..many have the same symptoms...

KS

Welcome Tony,,although very sorry for the reason you are here. Stay with us and you will find a lot of comfort and helpful information. RSD has 3 main symptoms: lack of regulation of body temperature, immune system deterioration, and lack of regulation of involuntary organs, like blood pressure, heart, lungs. Blood usually goes up, but can suddenly drop. The sympathetic nervous system causes a raise in blood pressure and the para sympathetic nervous system causes drop. A website that provides a lot of good information is rsdrx.com go to puzzles list 146 questions and answers. Also rsdsa.org Also rsdhope
Hope this helps. I've had this 15 years and full body plus internally. One of your new friends, loretta with big soft hugs

YUP YUP YUP..............that is part of it too.....this same basic discussion has been going on & off since I first came to the site back in 2003.........I like the rest here.........one minute I am comfortable & then all of a sudden out of the blue I am warm & start sweating profusely. Having popsicles around helps cool you down internally. I use to get so hot I would throw up constantly for no reason. Luckily that has passed. But popsicles helped that also. If I could eat one quick enough then I wouldn't throw up.

Now I drink an ice cold root beer or eat a popsicle to cool from the inside out. That helps relieve the sweating quicker than anything else I can do. Even going outside to cool off during the winter doesn't help as much as cooling from the inside out. BTW I live in north central California up on the west slope of the foothills to the Sierra Mtns. We get a little snow now & then here but it isn't that cold all the time.

Taking a shower is almost not worth it. I take a luke warm to a cool shower, not warm or hot & even in doing that I will come out of it sweating all over again. But atleast then I can say it is clean sweat *LOL*

Debby

RSD affects the vasamotors and sudmotors....circulations and sweating,,,,,,so,, No your not out of the norm,,welcome to the world of RSD ,the disease thats an oxymoron and consumes ones life,,,,,pray,,,pray.....then pray to the Lord some more

Yeah sad but true.. Mine is im always cold.. Never hardly sweat.. But i live in Iowa where its cold right now.. So until summer im a popcicle..lol.. welcome to the family so to speak.. Sorry for your reason to be here.. Its a crazy disease.. im fairly new as well. but were always willing to help..

For me basically my feet feel frozen a lot but I have begun getting the burning. It is hard for me to regulate myself cause if my upper body is hot my feet can be frozen at times and I can't tolerate a fan blowing even on my upper body cause I can still feel it on the feet. I am not sure if some of my burning is now that I am living in FL. I feel that with all extreme weathers my body feels it to the extreme. So if it is cold I go numb like if the normal person were putting their feet in snow. If it is super hot I start to get the burning feeling where others would just be uncomfortable. The pain doc I see said that the meds and other treatments are supposed to help with that. Right now I have not seen that. Feel better

Thanks for the responses, it helps a little to know that I'm not alone with this. I too try to cool from the inside out with ice water. That is the most effective. I guess I just keep doing what I'm doing.
Tony

I call these my RSD sweats. Awful-Hang in there-Carol

Since going off of the Methadone, I don't sweat as bad. I do believe that some meds contribute to it.

We have had a long cold winter this year and this is the first time I didn't use a fan this winter in about 7 years. I have been cold all winter. In the house or out, I am always cold.

I can't stand the extreme heat in the summer. I am in more pain in the heat then I am the cold. My feet however do stay a different kind of cold.

Ada