[Debby]

I got to looking at the Stanford Pain Management Center today & found that they are recruiting for a study, Intravenous Lidocaine in Neuropathic Pain. Which is exactly what I think I need to put these strange flares I have been having. It was suggested to me by a few of you to try this if possible when I asked for suggestions a week or so back. Thank you for the suggestion as I had totally forgotten about them.

I am certainly hoping that my having Fibro (dx 1989) & Sjogrens (dx 2003) will not stop me from being accepted into this study. I was dx with RSD in 2004

Does anyone have any suggestions in what I should &/or should not divulge to them? What I should emphasize or not? I wouldn't want to be distruthful (is that a word? LOL) with them, mostly just what not to emphasize to them I guess. Should I let them know about the new burning my body is dealing with? The surface burning that starts in my scalp & slides down over most of my body if I let it go & do not take any BT pain meds & extra Gabapentin. Could this be happening I wonder due to RSD turning into PN type pain totally? One of my PM docs thought that this might be what is going on with me now since having it so long & no real pain relief with LSB's. It started in my feet & is still in my feet 24/7.

Since we have to pay the 20% that Medicare doesn't pay getting this done for free would be wonderful for us. We live on 2 dsiability incomes thru SSD & a small amount from LTD insurance from the last job I held. I hadn't worked that much while my children were growing up & then I was in a car accident that put me on the disablity roles from '91 to '97, then back on them from '04 to present. Hubby has been on SSD since 1989.

Help Help.....???

Debby