Hi Everyone, Please help me. I have been many place on this 7 year journey with rsd but none as dark as this.

I am back to pre coma pain and then some,

I am hanging on by my fingernails day by day, trying not to dial 911 each day because I know they wont know what to do with me when they get me- but it is inevitable.

please send advise for emergency room. What can I do to get admitted for a few days of iv pain medication? My meds have not been working for several weeks now.

My pain management doctor has tried everything and almost killed me last week with a magnesium intravenous infusion which I had an allergic reaction to-
my brain was literally on fire for over 10 minutes, I kept calling out to my sister to get the doctor, my brain was like lava-

thank God she was there , I think I might have been brain dead other wise.

Please please give me your advice about the emergency room what to say to get care- they usually think i am drug seeking when they see my list of meds-
and please share with me if you have every experienced the brain burning episode,

there was very Little on the Internet about it except, mercury poisoning.

I do know that my body temperature had dropped to 91 degrees during the infusion.
(my pm was watching it with a tape)
so i had hypothermia. my brain was literally burring.

thanks so much for reading this and thank you in advance for helping me. dc

Unbelievable!
Actually, I'm speechless, but felt compelled to jump on this and say SOMEthing!
I certainly don't claim to know much, but I DO know that doctors take an 'oath' of some sort....
If your doctor is truly aware of the state you are in, there should be SOME way he can communicate with your ER so that they are aware of your condition. The ER needs to have on record your specific diagnostic info, so that when you do show up in a state of emergency, they'll know what they are dealing with. You should ask your Dr the very question your thread asks and he can advise you on a care plan ahead of time.

As far as the Magnesium issue, MrsD would be a good source . She is VERY knowledged in supplement info. She's on the PN forum alot, or she would welcome a private message. Your issue sounds pretty much like a crisis to me, so I'd go straight to the source!

I'm so sorry you are dealing with this

I would hope having a letter or some sort of official documentation from your PM about your health status & dx's would be helpful.

At least it would help to verify to ER personnel that you are under the care of a PM and do have legitimate reasons for needing extra pain control at times.
Especially if ER visit is during off hours or your PM can't be reached for verification.

There should be some way to have something on record ahead of time and verified at the hospital, just in case a ER trip is needed.

Might be just a case of asking the PM office to prepare a letter for you, or to fax it right to the hospital in question.

But it is also a good idea to have something official on your person in case of accidents or if away from home and an emergency happens, then you have the info with you.

Some print up a medical ID card with main dx, meds & drs listed, and carry that in the wallet or billfold.

Jo's right. When I was admitted through the ER for a cardio cath a few years ago, I was out of town without my paperwork, but I was able to call home and get my then 12 or 13 y.o. son to fax a copy of my typewitten list of meds, including specific dosage information along with the name and specialty of the doctor prescribing them.

This when I was too upset to remember half of what I was on.

I was specifically told by an ICU nurse that their opinion of me changed completly upon receipt of that one piece of paper, and the doctor ordered everything on it, except for the Oxycontin/oxcycodone and there he went one better.

Until my old computer died a couple of months back, whenever I changed any prescription, I just created a new document with a new date on top. Now it looks as though I'll have to enter it all, but I was at "ver. 141" when I left off.

i have been to er and had a shot of Toradol and it helped me Alot. loosened me up as well.. My pm dr told me about it.. course. its different for every one. i had to tell the er docs about it. so i have reservattions bout it.. but its your call. but if you hurt that bad, you can go and tell them toradol or morphine or something. its gotta be powerful like that.. keep us posted

I'm so sorry. I wish I knew what to say - but I've never gone to the ER for my pain. When my head pain is really bad, I can't move. The ER is out of the question. I crawl in bed and just have to wait it out. I take my meds, but whether or not they work I just can't tell you. Usually I vomit a lot.

Good luck to you. Hang in there. I hope you have some family to help you.

XOXOX Sandy

Hi, I'm so sorry you are in so much pain. I've been to ER twice. Once with a 911 call because I had passed out for an hour and half, paramedic told my husband he thought I was dead-blood pressure 60/40. I was unconscience for the trip, but I got attention immediately and put in semi-icu -I thought was 4 days,but hubby says 6.
The second time to the same ER, hubby took me-I was in so much pain. After waiting 3 hours in the ER, most of which was in the car laying down, we just left-couldn't get any attention and they said it was going to be longer wait. This was the hospital that had the RSDSA annual meeting last year. It's a great hospital, but I think you just about have to go in ambulance to get straight in. just my opinion.
Please let us know how you are and what happened, I've been checking on you every day. Thanks and hope you get the help you need. Your friend, loretta with big hugs

Dear DC,
I am so very sorry you are in so much pain. You sound exactly like me about four years ago. I was in so much pain and after the third time to the ER in a month with two admissions I too was treated like a drug addict in the ER by a terrible doctor. The day after treatment I told my workers comp doc and he told me to call the doc in charge of all the ER's in my area for the hospitals. It helped him to recognize how bad the ER doc was and as the EMT was wheeling me into one of the ER rooms I overheard the EMT telling the nurse on duty what my name is and that I had RSD and she said very nastily "Oh, I know all about her." I was in agony for hours there cause the doc thought I was wanting drugs and I was only doing what my own doc told me to do. It was horrible. I was looking at another site for you to research some info on called www.rsds.org. The web page is http://www.rsds.org/4/resources/pdf/...l_protocol.pdf. They have RSD Hospital Guidelines in case you will be admitted. They are very helpful but I could see the staff saying "Yeah right." And never doing anything to help us with RSD. They don't have a clue as to the extent of our pain. I hope this helps you out but know we have all been there. I remember not being able to close my eyes because if I did I felt I would die. I drove my son nuts during that time and he barely slept at night. I did get some ativan for a cast I had on my foot/leg and that stuff really helped with anxiety. I never had a problem with it before then but it really helped me alot. I will keep you in my prayers tonight. Hang in there. We are all here to support you.
kathy d

Jo*Mar is right. If you have a document from your pm doctor you have a much better chance for legitimacy. I have been in the ER many times and the letter has been a god-send. They will keep it on file. It just drives me nuts at how poorly we RSD people get treated. If you went in and told them you have cancer and the pain was excruciating they would be all over it. Most ER dr.'s are clueless on the facts of RSD pain. Another thing you should try if it happens during the day is have your PM doc call ahead for you. Then they will be expecting you. You have to be pro-active in making sure they understand you are legit. (Why do we have to prove our legitimacy all the time!!!?????) Arrrggggggh!

I can see one bad experience as a fluke but reading all of your unfortunate posts.... this just reaffirms how much our health care providers and system are NOT aware of our illness and what it does to a person..So unfair

Hugz, Kathy