NeuroTalk Support Groups - Anyone else have Hematidrosis (bleeding)?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Anyone else have Hematidrosis (bleeding)? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/117392-else-hematidrosis-bleeding.html)

Thank you so muhch for this information. I have never heard of it. Now IF it happens to me I will know not to be as scared. I have had rsd for 8 yrs as well and so far have not had to deal with that. It is the first time I have ever heard of it and I am so sorry for everyone that is or has gone thru it. I am just glad that it was shared with us all so for the ones of us that have never experienced it or heard of it will know about it. Thank you so much to everyone for there input on this whole deal. it will help me not to be as frightened if it happens to me. Thanks to everyone and god bless everyone.

Sincerely,
Tracy

Hi, I'm trying to find other people with this condition to learn more about it, since my boyfriends little 12 year old sister has a severe case of this in Japan and we are trying to bring her here to the U.S to get treatment. If you read this message and can share some information I would really appreciate it!

Quote:

Originally Posted by jetjock1 (Post 635587)

Here's a new one folks. I have suffered from this miserable condition for 8 years now. The other day I thought I was going to die from the intense crushing/burning we all get. I looked down at my arm and it was oozing blood out of the pores. Freaked me out bad. I rushed to the ER and they were just as freaked as I was. They were clueless. It took massive amounts of IV pain meds to get it under control. It was a real mess.

My pm doctor sent me to a dermatologist and he confirmed that it was "hematidrosis", a condition when pain and anxiety collide and cause the small capillaries around your sweat glands to burst, mix with the sweat and exit your body thus causing a bloody mess. It left severe bruising for days, weeks after.

Has anyone else had this happen? Now that I know what it is, I won't be so freaked out next time (if) it happens. Kinda scary. :confused:

Quote:

Originally Posted by trinba (Post 1219426)

First time I've ever heard of this. OMG, must be horrible to go through.

I hope you find the care you need. Can't they do anything in Japan? It's not exactly a 3rd world country, right? ;)