Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-22-2007, 10:24 PM #2
RSDmom RSDmom is offline
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Join Date: Dec 2006
Location: Wisconsin
Posts: 45
15 yr Member
RSDmom RSDmom is offline
Junior Member
 
Join Date: Dec 2006
Location: Wisconsin
Posts: 45
15 yr Member
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Hello-
I am a mom of a 13 year old girl who has struggled with RSD. My daughter loved gymnastics like you. There are lots of options that drs can explore to help with the pain. It sounds like you and your parents need some help finding options to give to your doctors. Websites like RSDSA.org and RSDHope have been very helpful to me as a mom when I try to find out what all this is about. There are lots of connections to be made here as well. I know it gets exhausting trying all sorts of paths to get better and unfortunately with RSD, it is the patient that needs to educate the doctor. My daughter is VERY lucky to have amazing drs right now, but they are the first to admit that they are learning about RSD too. My daughter has been in a wheelchair and on crutches and gets so frustrated with both. Everything is harder, but it has to get better. Some things that have worked for her include physical therapy, essential oil lavendar rubs, lidocaine patches, warm water baths, sometimes contrast baths (although not this flare), meditation, relaxation tapes, pool therapy and nerve blocks. I hope this gives you some ideas to ask your doctor about. Unfortunately, not everything works for everyone and there are times when something works for one day and not the next. The key is don't give, keep trying and check back in often with others. Call friends up and have them come over to watch a movie or play a game or something. Try to stay connected. You can do this.
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