Hello everyone! Its been a while since I have been here because I had some personal issues that have taken me away. To those of you that have been friends the past few years, I want to thank you and let you know I am ok. I hope to catch up and see how you all are doing. I don't know who drops in any more but I look forward to hearing from those who do.
Also, there are so many new people....and to you..."hello" and I hope to get to know you better. Blessings to all....di

My name is Rae.....this forum has become a wonderful family to me! I hope to get to know more about you!
Your ol' 'buddies' will be thrilled to see you back again!

They've all been so wonderful and made me feel so welcome and helped me thru some of my darkest hours.....
Now it's my prayer to be able to return what's been given me...

Rae

Hi Diana.My name is Carol Dever and I am glad to see you post.I have heard lots of positives about you and we need all of the blessings that we can get.
Looking forwars to getting to know you-Fondly-Carol

Hi Carol, Thank you for the greeting, the message and the kind words. I did leave you a reply. I look forward to a great friendship. I hope to chat with you soon.
I am struggling with my arms right now but I think the warmer weather will help ease up the pain.

Di

Hello Diana:

WELCOME HOME!!!!!!!!!!! I am Kathy.. from NY..and I stand by my favorite screen name..keep smilin..It is a must!! I am an RSD'er since 07 when it began in my right leg now whole body/internal also...... but my life is still wonderful and a blessing in spite of my pain..... Welcome back dear..So nice to hear from you..I look forward to chatting with you..we have a wonderful family here..We are all sadened by our pain but we are happy to have eachother..

Hugz, Kathy

Hi Kathy. Thank you for the warm welcome! I was diagnosed in 1989 from a right shoulder injury. I had surgery on my shoulder, blocks and a sympathectomy, still resulting in a spread.
I too have full body, a frozen right shoulder and a RSD Tongue...don't tell anyone...LOL
I too love life and love living life, not to say that I don't have any days of dispair...'cause I sure do. I agree. "We are in good company." Thanks for the warm welcome and I look forward to chatting with you too! Hugs di

Hi Rae, Thank you so much for the warm welcome back. It is so nice to get a greeting from a new friend! I look forward to getting to know you better.
Di

Welcome back. I hope you are feeling a bit "resolved"....

How are your arms?

XOXOX Sandy

Hi Sandy! How are you doing? Thank you...yes things are starting to settle down.
My arms are very painful. I have the bone crushing pain and the burn. I am covered with a deep red mottled upper body and arms. I hope I can get some oxygen soon and get some relief.
I hope you are doing ok, please let me know. Whats new and happening for you? I hope you are feeling well.
Great to see your still here!
Blessings..di

I am so sorry about your arms, and the bone crushing pain. Ughh. As a fellow RSDer, I know the pain of which you speak...Mine is mostly in my head, but started in my right shoulder from repeat right rotator cuff repair surgeries.

As for HBOT - How did you get to where that was your treatment of choice? Did you try a round of lidocaine or ketamine first? And does your insurance company cover it? Are your ears OK? One of the members of our support group here in RI tried HBOT and had a lot of trouble with her ears, and still has difficulty hearing on one side from HBOT. Just curious... I haven't tried it yet. I've been sick for 3 and half years, and will be going for outpatient low dose ketamine in NJ in a few weeks. It's taken me months and months to get it, the process was very long and time consuming and - as far as insurance goes - still not done.

Glad to see you back. Thanks for your reply.

XOXOX Sandy