Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-14-2010, 02:45 AM #7
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mrsD mrsD is offline
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mrsD mrsD is offline
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Join Date: Aug 2006
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Thank you for that input.
There are two issues here. Business issues, and medical safety and effectiveness. The mention of any company in Forbes or other business media means only that the company makes money. Many huge companies in the drug industry are in such media, and still engage in medical fraud. The recent examples of Pfizer are typical. So just because a company makes MONEY successfully does not mean people should blindly trust everything that company promotes.
Places like this where people come together to discuss and ask questions, are useful in sorting out complex products and therapeutic situations.

And yes, a patent is for protecting the owner of the patent and therefore product. It is not for protecting the public.
http://en.wikipedia.org/wiki/Patent
Quote:
The exclusive right granted to a patentee in most countries is the right to prevent others from making, using, selling, or distributing the patented invention without permission.[1]
This Wiki article explains MLM in more detail for those interested who wish to learn further. Often MLM companies rely on word of mouth, friends encouraging their friends to buy from them, or relatives. People are more likely to buy from someone they know and trust.
http://en.wikipedia.org/wiki/Multi-level_marketing


There is a blog concerning Reliv products that is on the net which is interesting to read. It has many comments by people who are dissatisfied with Reliv products. This blog illustrates how some supplements are not useful for some people, and may actually result in harm. This is why people should research and ask questions like the originial poster, krank is doing here. Notice the word "cure" in his post? Always be careful when you hear that word.

On that blog is a copy of a letter from the FDA chastising Reliv to change its claims about Arthaffect.
http://relivwatchdog.blogspot.com/20...thaffects.html
(this is the link to the FDA copy of the same letter:
http://test.fda.gov/ICECI/Enforcemen...ucm1107191.htm)


So back to Arthaffect. I am using this one product as an example. I don't have time to study all their offered products and chose this one because of issues contained within it. This contains glucosamine, which many years ago enjoyed some positive press and encouragment. A book was written about the combination of glucosamine and chondroitin, in fact by a doctor who used it in his practice. But as time has passed more studies are showing that this combo is less effective than previously thought. Also the presence of Bioperine (piperine) in the product poses some risk to people taking prescription drugs. Bioperine enhances the absorption of things in the GI tract, and is sometimes included in supplements. It also enhances the absorption of drugs, whose basic dosing was arrived at in human subjects NOT using enhancing substances. Drugs with narrow therapeutic windows may be absorbed more than wanted therefore with Bioperine and cause problems for the user. I really think this should be spelled out on the label of the products that include it.

Dr. Sahelian has this to say about Bioperine:
Quote:
Piperine and Drug Interactions
Piperine from black (Piper nigrum Linn) and long (P. longum Linn) peppers increased the AUC of phenytoin, propranolol and theophylline in healthy volunteers and plasma concentrations of rifamipicin (rifampin) in patients with pulmonary tuberculosis.



Piperine side effects
Not enough human studies have been done to determine the side effects of chronic supplementation with piperine. For the time being, it is a good idea to take 2 days off a week, and one full week off each month from the use of a piperine supplement. It is quite likely that the small amounts of piperine could provide health benefits while larger amounts could be toxic or damaging to the liver or other organs.
from http://www.raysahelian.com/piperine.html
You will notice from his website where he sells products, that he does include medical research to help the reader make more informed choices.
And there are other warning letters from the FDA to Reliv:
This one in 2006:
http://www.casewatch.org/fdawarning/...01/reliv.shtml

So what is the bottom line? 1) can you afford this product, and is it worth the price it charges?
2) Have you researched the ingredients carefully before deciding on using any of their products. Don't only use their website for information, go to other non connected sources to confirm your searches. Don't accept word of mouth praises. Everyone is different and people may be taking drugs that interact with supplements, for example. They may have allergies or food intolerances. And be aware that products with many ingredients on the label, will be difficult to sort out, should you have a negative reaction. You will be hard pressed to figure out exactly what is causing side effects.

People who know me here, know that I am professionally trained and very careful about supplements in general. I use many myself, and research them all carefully. I do not recommend any product by ANY manufacturer/distributor that has proprietary blends listed on the label, for example.
A long look at the proprietary blend of Arthaffect shows Licorice root in that 988mg blend. Is there enough of this to be effective? Enough to cause the typical side effects of licorice root on the kidney? There are no real answers to this question for this product. Licorice root has serious consequences for some people:
http://www.umm.edu/altmed/articles/licorice-000262.htm

So do be careful in choosing any supplement. Do your homework also.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.

Last edited by mrsD; 04-14-2010 at 03:04 AM.
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