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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Finally got my date for ketamine!!

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Old 04-08-2010, 06:56 PM #11
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Originally Posted by SandyRI View Post
Ughh - I forgot - of course there is a big price difference since the ICU is used for the "5 day," which can really end up being longer than that since I think they begin counting the 5 days when you've actually titrated up to the highest dose of ketamine that they intend to use. I will be thinking of you on the 29th...

Take care, XOXOX Sandy
AND I will certainly be thinking of you on the 16th and many days afterwards!!!!!!! My prayers are with you...
Hugz, K
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Old 04-08-2010, 10:54 PM #12
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Sandy!!!
I am doing cartweels of happiness for you and bouncing up and down with joy!!! You deserve this victory as you have been a persistant warrior and never gave up hope!! It looks like you've got all your ducks in a row!!!
You can spend the next week getting calm and relaxed so that you can have a successful and effective treatment!!!
Sandy, this is great news!!
Hugs and yahoos!!!
Hope4thebest
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Old 04-09-2010, 01:34 AM #13
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Quote:
Originally Posted by SandyRI View Post
Ughh - I forgot - of course there is a big price difference since the ICU is used for the "5 day," which can really end up being longer than that since I think they begin counting the 5 days when you've actually titrated up to the highest dose of ketamine that they intend to use. I will be thinking of you on the 29th...

Take care, XOXOX Sandy
Sandy -

My belated congrats as well. (Been away for the last week.) It's all wonderful news, including the part that United Heathcare is now signing off on this!!!

Just out of curiousity, do you know what the "full titration" dose is? (It may be expressed as mg./kg./hr.) My hunch is that there's a reason you're in the ICU at that point: the therapeutic dose for people with non-acute CRPS may be substantially higher than the "low dose" figures that are typically bandied about. Just curious in any event.

And so happy to here about the timing vis-a-vis your job. That's really nice in and of itself.

Mike
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Old 04-09-2010, 02:12 AM #14
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Best of luck Sandy !

I pray this will bring you significant relief !
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Old 04-09-2010, 07:49 AM #15
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Hi Mike,

My low dose ketamine dosage will be about 200 - 250 mg per day, over about 4 hours, per Getson's articles that he wrote on the treatments in the Spring of 2006 and again in 2009. A fellow RI RSDer just started the 5 day inpatient treatment at Drexel in the ICU on Wednesday, I have asked his wife what his dosage is. I am sure it is substantially higher. He has CPRS II (and very limited mobility), while I have CRPS I.

Thanks for your well wishes. I will keep you all posted. XOXOX Sandy


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Originally Posted by fmichael View Post
Sandy -

My belated congrats as well. (Been away for the last week.) It's all wonderful news, including the part that United Heathcare is now signing off on this!!!

Just out of curiousity, do you know what the "full titration" dose is? (It may be expressed as mg./kg./hr.) My hunch is that there's a reason you're in the ICU at that point: the therapeutic dose for people with non-acute CRPS may be substantially higher than the "low dose" figures that are typically bandied about. Just curious in any event.

And so happy to here about the timing vis-a-vis your job. That's really nice in and of itself.

Mike
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Old 04-09-2010, 09:34 AM #16
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Quote:
Originally Posted by SandyRI View Post
Hi Mike,

My low dose ketamine dosage will be about 200 - 250 mg per day, over about 4 hours, per Getson's articles that he wrote on the treatments in the Spring of 2006 and again in 2009. A fellow RI RSDer just started the 5 day inpatient treatment at Drexel in the ICU on Wednesday, I have asked his wife what his dosage is. I am sure it is substantially higher. He has CPRS II (and very limited mobility), while I have CRPS I.

Thanks for your well wishes. I will keep you all posted. XOXOX Sandy
Oh Sandy.. Please relay the word from our fellow RSD'ers wife..CRPS II and his status..often.. I am in his boat... requiring the 5 day sleep moderate dose..here we go with that "boat" again... Jeanie~ I row this time..you kick back!!

Hugz, Kathy
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