Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-01-2010, 05:05 PM #1
RSD31 RSD31 is offline
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Well last week i went to hell & back i got my decision from the appeals court about my Longterm Disability i lost and do not know where to turn then I seen my Ortho Doctor and I need to have a total shoulder replacements done both sides I'm so scared my RSD has been bad to it is not helping that I'm so stress. with the LTD the lawyer said I'm done nothing can be done the law are on the insurance company side he said that they are the Judge - jury - ruler so it is call you get screwed I'm talking to my state senator for help and things that he can help me get on 60 Min's, they always say bad thing come in 3's will number hit this week, please pray for me i need your help bad
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Old 04-01-2010, 05:09 PM #2
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Why do you need shoulder replacements- my hip replacement sent my RSD into a rage that hasn't stopped in 7 years! Just be careful that you must have this done!! That there isn't something else you can do to hold off on surgery...
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Old 04-01-2010, 05:36 PM #3
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Why do you need shoulder replacements- my hip replacement sent my RSD into a rage that hasn't stopped in 7 years! Just be careful that you must have this done!! That there isn't something else you can do to hold off on surgery...
Debbie
I agree.

RSD31, what kind of longterm disability are you refering to? SSDI or longterm disability from your employer?
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Old 04-01-2010, 06:06 PM #4
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Quote:
Originally Posted by RSD31 View Post
Well last week i went to hell & back i got my decision from the appeals court about my Longterm Disability i lost and do not know where to turn then I seen my Ortho Doctor and I need to have a total shoulder replacements done both sides I'm so scared my RSD has been bad to it is not helping that I'm so stress. with the LTD the lawyer said I'm done nothing can be done the law are on the insurance company side he said that they are the Judge - jury - ruler so it is call you get screwed I'm talking to my state senator for help and things that he can help me get on 60 Min's, they always say bad thing come in 3's will number hit this week, please pray for me i need your help bad


you might read & post this on our Social Security Disability forum if that is what applies for you, there might be some tips or ideas there.
- http://neurotalk.psychcentral.com/forum28.html
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Old 04-01-2010, 08:00 PM #5
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Default Hi,

If you have to have surgery ask the Anesteologist to do a block before the surgery.

Ada
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Old 04-01-2010, 10:51 PM #6
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Ditto on the advice above,,I had a THR and rsd went into overdrive,,,its a deep joint surgery,,,continous block if its a have to case,,but other than that I concur with the above,,I also have both shoulders that are bad,,one that has a torn rotorcup,,,I dont lift my arm over head or do front lateral raises,,,good luck,,,,pm if you want to,,I was informed of a insurance option 2day
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Old 04-03-2010, 04:21 AM #7
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I'm just curious what the issue is that you need bilateral total shoulder replacements done. Is that condition really worse than the bilateral shoulder RSD that it would probably cause ?

Where is your RSD now ? Will you be able to do all of the shoulder exercises needed after the replacements ?

I have a friend who's ortho wants her to have a shoulder replacement and has mentioned "there's a touch of RSD in there too" How the heck can it only be 'a touch' of RSD ? I'm so afraid for her that any surgery will just make things worse.
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Old 04-03-2010, 11:32 AM #8
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I won my ssdi but the longterm from my employer I lost. the Ortho did xrays on both the shoulders and i have no joint space left so it is bone on bone I have RSD in both my arms from my shoulders down to my hands and it is spreading to my legs, i was getting injections in my shoulder every 3 months but it is not working any more.
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Old 04-03-2010, 02:53 PM #9
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Originally Posted by RSD31 View Post
I won my ssdi but the longterm from my employer I lost. the Ortho did xrays on both the shoulders and i have no joint space left so it is bone on bone I have RSD in both my arms from my shoulders down to my hands and it is spreading to my legs, i was getting injections in my shoulder every 3 months but it is not working any more.
It seems to be a common practice in this great nation of ours. My wife has had RSD for 8 years. She worked for the largest defense contractor in the world for 15 years in the benefits department. She was denied longterm disabilily (2 years) after 4 years of suffering with no treatment from ignorant docs and also has been denied SSDI sinse 2006 from stupid government employees, or are they? Of course not, it seems to be greed more than anything, which is fine by me but not when an employee pays into a system then rips them off when a payout is do!
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Old 04-03-2010, 07:19 PM #10
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I won both SSD & my LTD insurance right off the bat. I didn't have any problems with getting either one at all.

I don't see how LTD can deny you when you won your SSDI. Makes no sense to me at all. I do have fill out paperwork every 2 yrs though to keep getting it. When I turn 62 I will no longer get it though. They figure when you hit retirement age they don't need to pay you anything.

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