I am a patient of Dr S and Dr Knobler, his former partner. Dr S had me in for a ten day stretch of high dose lidocaine infusion. No cure.

I now see Doctor Knobler, and am not sure why his name doesn't come up more often.
IMHO, he is as smart as Dr S, just more conservative. He's got rsd, too. He knows the ropes. (He deals with an anesthesiologist, I think, I don't pry). He is also a Ph.D psychology I believe, he can learn a LOT just by speaking to you! He can tell you things that you didn't know about yourself, and he's very strong with insurance companies.
His C.V. is very thick. Your attorney will love him.

I've been with him about 20 years, and he doesn't mind who else I see, but he is my main doctor, over and above Dr S. Dr S. you see, will farm you out to his circle of doctors who will prescribe, etc.

Doctor Knobler will do the same, but he prescribes, and will take a steady even handed approach, I have great respect for both of these men.

Doctor Knobler moved his office out of Jefferson, although he is still affiliated, and opened his own clinic, called KIND (Knobler Institute of Neurologic Disorders) He specializes in RSD and MS.
In Fort Washington, a mile or so off the PA Turnpike, outside of Philly.
He takes no insurance, but you can send the receipt to yours.

Having this disease since '83, I would recommend him to anyone else who has it.
(Of course, I've seen many people drive all day, or fly in from other countries to see him).

Pete

Thanks Pete..I just wish they could duplicate these top notch RSD phsycians so we could all have easier access to them and the bonus would be our insurance companies would be on board so we could proceed with treatment instead of getting held back by the almighty dollar..so not right!!!

Thanks again, Pete..

Kathy

can someone give me the phone numbers to the drs in florida.. I know there is a waiting list. but i am out of options.. I need to see a dr who cares enough to want to try to help even if my chances are slim.. I thought i would see how long.. maybe send my records and see what they suggest. maybe finally get some long deserved help.. pm it to me if you dont mind.. i mean dr. S or kirpatrick or however you spelled it. sorry.

thanks.

Thank you Daniella.

The doc I see at CC says the only thing left for me is the month long inpatient PT, or an SCS.

I cannot afford either of them.

Jules

Hi Pete,

Thanks for the info. I wish that I had lots of money and was able to travel comfortably.

What amazes me is even the reputedly kindest of docs only accept "cash" in payment and insist upon the patient filing for reimbursement themselves.

If Knobler is so strong with insurance companies, why doesn't he accept most insurance plans and file himself? And he's not the only one, a lot of the really good RSD docs are the same way.

Sandy

Amen, Sandy!!

Hugz, Kathy

Hi Daniella.

I do have some experience with Dr. Schwartzman and some very good pain doctors who do ketamine in NYC. So if you tell me your location i.e. east coast, west coast, etc I might me able to help you.

Gabbycakes

My question would be what kind of Drs. these were before they got on the one track trail. Was anyone seeing them before one got on Ketamine, one got on SCS, one got on Pain Pumps, etc. What made them get on the one track?

Insurance Companies won't give them the whole amount they bill such as SS doesn't so I would think it's a way of getting what they want for a visit.

Sandy those kind hearted Drs. want Money.

If I see a Dr. that diagnoses me and says, but I can't do anything for you, I move on and believe me I don't think he's great. I would rather he say, well you have this and we could try this or that and I'll do what I can to help you.
I don't give them credit where it's not warrented.

My PCP took care of me for 5 years free so I put him in the catagory of being a caring Dr. but a lot of the Drs. nowadays are strictly out for the money.

I saw a PM Dr. here that charged me 275. for 1 visit about 5 years ago only to tell me he couldn't help me. How many patients does he run through there like cattle and then don't have to mess with them anymore? He did tell me I needed to be in a month long rehab program. He owned that program. I decided to ask the recepenist how much it was on my way out and she told me 10,000.

Maybe too, the insurance companies have them figured out also.

Ada

Hi Barbara,

My daughter is under the care of Dr. Kirkpatrick in Tampa, Florida. We love him, he is very caring and funny!

Here is his number 813-995-5511
His address is 1910 E. Busch Blvd. Tampa, Florida 33612

The facility is called The RSD/CRPS Treatment Center & Research Institute.

I hope this helps. If you need anything else, you can pm me.

Sandy

Once again..we RSD'ers come out on the bottom..again..again and again..huh?

I am sorry for all of your pain also.. somehow we are bettter people for it all..someone shoot me now for talking so silly!!

Hugz, kathy