Since I messed my post up I will rewrite it and I am sorry about the mistake. I was told similar as you by a doc but it was wrong cause then I went for other opinions and was given many other less invasive options. I am not sure what treatments you have had but could you go for another opinion? Sorry again about my post. I have to proof read more.

Lisa,
If the SCS doesn't work there is the pain pump. They can put just about any mix of meds a person would need in one of those & they go into the spinal fluid directly. SCS is not the only thing that can help. In fact I would go for the pain pump before I would go for an SCS. I have just read too many horror stories vs good ones.

DebbyV

Saw Dr Schwartzman on Monday. Katie's involvment will need the coma treatment, however we are trying the 5 day in patient ICU at Hahnamann first to see if she can get some relief in the mean time. Praying that Katie experiences the benefit like so many have....Katie's bladder has shut down at this point and she is near inability to swallow. Cleareance from Cardiology and Physc and then admission

Hi Lisa, and Welcome to this warm group of friends. There is a lot of combined knowledge here, caring, sympathetic friends.
I have had RSD 15 years and full body and internal. Full body is sometimes also called generalized. all limbs-spine. hands, feet, Internal means internal organs. Most on here talk about the pelvic region. One of the symptoms is heat, sweating. The inner thigh to the touch can be red and hot. lower back, butt- hot to the touch. Also burning inside. Can have rash on the outside of pelvic area. I also have neck pain and terrible headaches. I do believe have kidney involvement, need to get another check up.
I got RSD following surgery. It is a common cause. That is also why when we already have RSD, surgery is a huge risk. Please do your research before any procedure.
A website for RSD is rsdrx.com Dr. Hooshmand from Florida is retired, but has his website up and very informative. If you have any questions, please PM me (private message) and I'll try to share anything I can. One of your new friends, loretta

[COLOR="Navy"]I've known 5 "RSD" patients who had SCS implanted. All 5 are very unhappy with it. However, I spoke to a couple of patients in my doctor's reception room who had a "pump for intrathecal delivery of pain medication" implanted to administer pain medication. These patients appeared to be very happy with their choice. My pain management physician also agreed that this is a very good delivery method and would be of benefit to many. You may think of this vs the SCS. Food For Thought!

Hi lisa,
I am sorry to hear about yur struggles and for your daughter's sad experience with her pregnancy and the news that she can't bear children. I know she is in Southern Cal and far from you, but please let her know that she has friends on the message board that are keeping her in their prayers. Though I am sure she is grieving, I am hoping that her fate may have other plans for her that could bring her joy.
Hope4thebest