lately i have been falling asleep and not waking up for full days and most nights..up for maybe 1 hr off and on.. when i wake i am totally oout of it..no idea how long i was out or what day it is...my face is somwhat numb but not like when i was having the mini-strokes..i am suppose to get scheduled for a sleep clinic..i don't think i have apnea but something is just not right..i have to schedule it around a time when i can have terry stay at his camp for a few days..maybe end of feb...what else could be going wrong??my meds are closely monitored by drs and me...most sllep spells i sleep right thru med times anad sscream very loudly but have no idea i am doing it..also answer the phone anad have conversations that i don't remember having.... any suggestions??? anybody get answers from sleep clinics..or will i forever be Just A Mystery??? moonstar

Hon, what meds are you on?

I have same question as LisaM.

Even though your doc's know what meds you're on, it's good to look them up yourself on line. I was having major problems with my heart, all due to a muscle relaxant, for a year. The doc put me on heart medicine, etc. But when I discovered a side affect that even my doc & the pharmacist didn't know about, and stopped this pill, my "heart trouble" went totally away!

Hope you have someone who can help you look them up! Let us know if you don't.

Another hug,

Denise

for your replies to help..unfort..the nurse that comes to assist me with my autistic brother never showed up today so no time to list my meds ..little time to reply as he needs constant watching & attention or he will be up all night..i am just exhausted...the 200 mgs of provilgil taken today at 1pm is wearing off..

i take vicoden es 5-8 (as needed)= pain
zanex .5 mg 2-3 x's (as needed) =anxiety,depression
oxycontin 20mgs 3-4=pain
skelaxin 800 mgs=muscle spasms
lyrica 100 mg 2-3=pain ,nerve damage
lidoderm patches 3-4= nerve damage
meclizine hcl 25 mgs=vertigo
crestor=colesterol
prozac 60 mgs=depression
vit b- injections 1ml weekly=energy
benadryl (as needed) =itchy
ambien cr (as needed) but have not needed it since started sleeping way too much use to have insomnia for days.
detrol la= using bathroom over 15x's a day
nasonex=allergies i never had before
***my only blessing** provigil 200 mgs//(tried 100 no good)( tried 150 no good)
tried:::: amantadine for energy//stopped it
was on cymbalta 120 mgs depression //stopped it
lexapro 20 mgs depression//stopped
celexa=depression//stopped
elavil==stopped
celebrex//stoped
tricor=colesterol//stopped
plus many others and combo of others throughout this 13 yrs of complete maddness,pain,stress and loss of the person i use to be...

they say no wonder i am tired... terry finally fell asleep just change 1 thing in his routine and he has a hard time adjusting..even though i try to change many subtle things in the day for him..when she is not here is is so happy to just be with me and have our special time together that he can't shut off his excitement..can't blame him..i am just so tired...

Have you been evaluated for chronic fatigue?
fybromyalgia?
mono?
Epstein barre?sp

been evaluated for everything... yes on the fibro-entire back from neck on down
have had 5 mini-strokes went for every test for that too...good news all is fine..heart,arteries,lungs.etc..
am waiting to get an appt for sleep clinic..what that will do????? i have given everything possible a try and then some have been done over 3-4x's ahhhhhh
like i said they call me a mystery...bbut somehow i keep on going??? got to go fallinng asleep at the keyboard goodnight--peace to us all

Jo beat me to the punch. IT sounds like Cronic Fatigue Syndrome.

I have it and I slept for months like that. I just never thought I would get to where I would stay awake. I don't know how Bill stood me all of these years the way I have been without bitching all of the time.

I was told that all you can do is sleep it off. It will finally calm down or go into what I would call a remission.

When I read your med list, I just about fell out of my seat. I can't take any but I guess with what we deal with a person has to be on a lot. It could contribute to what you are going through but I would definately ask your Dr. about CFS which also goes with Fibro but not always, it's a disease in itself.

Ada

Well, NO WONDER you're tired, snookie!

Lookie here - all of these meds on your list that you take on a daily basis have sleepiness/tiredness or lethargy as a side effect:
vicoden es 5-8 (as needed) Sleepiness (sometimes goes away after use)
zanex .5 mg 2-3 x's Sleepiness is the intended outcome of this med
oxycontin 20mgs 3-4 Sleepiness OR insomnia are side effects
skelaxin 800 mgs Fatigue is a side effect
lyrica 100 mg 2-3 Drowsiness, but can go away
meclizine hcl 25 mgs Drowsiness
[Benadryl Everyone knows this makes you REALLY tired!
prozac 60 mgs Lethargy
benadryl (as needed) Sleepiness
detrol la Patient info states not to take if you are doing something that requires you to "be awake and alert"

Also...I don't understand why you are taking vicodin AND Oxycontin, both. As far as my pain doc would be concerned, I'd be taking only one or the other.

provigil 200 mgs//(tried 100 no good)( tried 150 no good) That's okay. You are allowed to take 200 mg's. I also take this. BUT one thing I learned is that this medication has a tendency for the patient to build up a tolerance to the dose VERY easily. So it's quite possible, if you take this daily, that you've already built up a tolerance to the 200 mg dose. I'm not sure what the max dose is that you can take, but I'd check with your doctor. OR, spread the dose out. What I do is take 100 mg's in the morning, then later in the day I take another 100 mgs, so I can spread out the energy. That way I don't "crash" either.

So with so MANY of your meds having a side effect of sleepiness and lethargy....my GOODNESS it's no wonder you're tired sweetie!

Hon - it's not YOU ...it's your meds!