NeuroTalk Support Groups - Remission !!!!

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Remission !!!! (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/118941-remission.html)

Quote:

Originally Posted by FlyEaglesFly (Post 643535)

Good afternoon. I hope you don't mind my selecting your post to reply to but it was teh most recent. I am a new member and am not even sure I am in the right "forum' but if not perhaps someone will point me in the right direction. I am a care giver for a long time migraine sufferer. Over the past 6 years she has gone through numerous doctors and countless medication with no relief. The chronic pain has cost her job and she has no quality of life. Although I cannot imagine the pain, I can tell you that it is also very difficult to watch someone you love suffer daily and not be able to help(please do not take this as my complaining about me as that is not my intent). Anyway, after searching the internet, I am looking for physicians in New York or surrounding areas that treat migraine/chronic pain through a pain pump or the out-patient ketamine infusion therapy that I have read so much about. I saw some posts from people in western New York but they were dated. She is currently seeing Dr. Gosey in Williamsville but the NP that has been assigned to her does not take her pain level seriousl (the previous NP left the practice) and will not even consider the pain pump even though the previous NP was all for it before she left. I have thought of making an appointment with Dr Kreusz(sp?) in TX but if we can find help closer that would be great. Sorry for the long initial post but I am sure you can all understand the frustration in trying to explain your situation. Thank you in advance for any help/advice/information you may offer.

You might want to check out the NT Headache forum at http://neurotalk.psychcentral.com/forum32.html

Good luck.

Hey all ,

Again thanks for the warm responses :)
I only have a minute but did not want to let this slide

Sandra - so good to hear from you .I hope everything is going OK!
What many here may not know is that a lot of us go back to before NT started. We were members of another board before this one began so our histories are very much connected.

Jeannie - very interested to know about your outcome with the naturopath . Good Luck!

Hope - Have you tried "mindful eating" ? It may be a great place to start.
You are not alone in eating mindlessly.
The big food companies depend on it to keep people addicted to their evil toxins .
The question is "Does eating this way and the suffering it brings ( though the temporary analgesic of taste is so powerful!) ease your pain ???"
On another matter ,I have actually had L4 L5 surgery and some spinal- thoracic and cervical- fractures .
Didn't you read my history in those old posts?:wink::)
Sometimes a cigar is just a cigar .....
Localized back pain can be so many things including misalignment , tight muscles etc.
Localized hip and back pain with referred pain down the butt leg and/or calf and toes can be disc related NOT RSD
I wish this for you ( the tightness ..not disc injury!)- and certainly not (more)RSD !

Mom of 4 ..Hope implies a somehow better and different future.While that is all well and good , it is in the NOW that we live .
If we heal and work on that present , we can directly impact our future no matter what life throws at us so we can have both hope ( and I so want for you all to experience remission) and acceptance .
These feelings of being defeated or conversely of being in charge and content with our lives , can be extrapolated from the "sick " (and /or well ) model to fit any paradigm of "current" living .
The question becomes ...How do you want to live RIGHT NOW in the moment?
It's up to you . takes practice. Always a work in progress:)
AND so much easier when not overwhelmed by pain and injury .

more later . Hope I didn't miss anyone:)

Peace all

GnP

It's really good to see you back and in such fine form. You are an inspiration and a breath of fresh air.

I'm on the same track as you regarding diet but I can't say I'm in remission. I still have too much stress in my life but that's all about to change very soon.

Much peace.

MsL

Thanks MslLady

Love your signature line :)

While I don't think my diet/lifestye cured me ,I do think we can eliminate some symptoms we experience and have learned to live with, through conscious ,healthy eating .That, and really listening to our bodies.

I forgot to mention supplement use:
B12 does not come from any vegetable sources so it is good to supplement. .
As I have other heath issues I take extra omegas.The ratio for optimum omega health is 2:1 in favor of omega 3's .
Many nuts and seeds are a good source.Flax seeds in particular are high in omega 3's and pumpkin seeds for 6's
As I am often lax in seed purchase, I supplement .If you are serious about being vegan beware many of the over the counter omegas contain fish oil!
In this case and all others : ALWAYS READ LABELS . The cover story can be deceiving.
I also take vegan multi and extra D2 as ergocalciferal as D3 is made from lambs wool and not vegan.Vitamin D defficiency is epidemic due to the use of sunscreens and indoor living etc.

It is best to have a vitamin panel performed by a doctor so you can customize your requirements
It is important to note that a well balanced vegan diet will cover all your nutritional needs (except B12) .Probably more so as it is healthy, and "conscious".

Take good care and be well.
GnP