I couldn't take it anymore!! Any one want to join me when I have tea and visit with him?????????????? Jeanie..Sandy..You better be there!! You too Bobber.. Read on....



Dear Larry and staff:

I have been a fan of your show for many years but today I have to write and say I am appalled... Larry, you gave 98% air time to someone who has had the medias attention for his bad doings and wrong choices ... he has brought on himself.. and instead you gave a "blip" of time to a young beautiful woman who suffers from a debilitating..horrifying, painful illness...You did NOT even mention what the name of her chronic illness! It's called Reflex Sympathetic Dystrophy... Larry, I HAVE RSD... I am among many who suffer from that "nameless" illness, known RSD. I can tell you first hand ..it is the worst, debilitating, painful, life altering, degenerative illness out there.. shame on you for not allowing more precious air time to our illness...We need to bring awareness to RSD and we really need your help and support.. and we won't get the way you handled that "blip" last night!! I would be thrilled to meet you and talk with you first hand about my condition with the hope of making the world aware of the countless others who suffer daily with RSD.. I would hope you will find it in your heart to extend yourself to aid us and stop spending so much time on the "whatever" that is going on out there!!

Sincerely,

Count ME IN . I posted a thread on the RSD Facebook page to express how dissapointed and horrified I was at the show last nite. I rewound my DVR 3 times to make sure I did not miss anything,but NOOOO once again we RSDers got shafted out of a golden opportunity of even a mere mention of our disease. Was this done on purpose??????? Makes me wonder, but I am FUMING MAD AS H________ over it. Once again we get the shaft at a perfect opportunity to spread awareness.

Carol

Kathy, You are so right about all this monkey business. First of all The "blip" you talk about was not at all about rsd ,it was about a cute TEENAGER with a chronic illness, that got books from people who knew that reading helped ease her pain, well where did that come from? She must have done some kind of interview with someone and told them she had rsd because where did the rsdsa see in advance that this was going to be on t.v. I also think it was unfortunate that Tiger's first day of play was yesterday because Tiger is news, and from that stand point I can see why he felt it had to be dealt with lastnight, but he could have put a stop to alot of that talk and maybe re scheduled either the cute teenager or Dr. Laura. I bet you anything he has no idea what rsd is, well I'm on board with you Kathy! You go girl! Wendy

Thanks family..I am just sick and tired of this "let's keep RSD a secret" .. while we all suffer.... I ma on the war path..it's a big bus..plenty of room for all of my family here..Watch out Larry..and think you had your hands full with Tiger!!?!! you ain't seen nothing yet!!

Hugz, Kathy

HI Everyone,

I am also an RSD sufferer. However, I do have to say that I was surprised about this thread. I also saw the article on CNN about this teenager.

I guess I just don't understand the level of anger. Remember getting all worked up about things that we can't control only creates more pain. No matter how angry we get or how much we talk about this, it's not going to change how much air time is given. Tiger creates viewers. Not to say that RSD isn't as important. I also don't agree that RSD is being kept a "secret" It's not a secret, there's just limited information out there about specifically how this can be treated. They don't know. That's why it's trial and error.

My motto is to worry about things that I have control over or I can change. If I can't change it or have control, it's not worth the increased pain.

RSD is what it is. I have less pain because I don't worry about things I cannot change.

Hi Dealingwithtos, Excellent Motto!!! I too live by the same standards. I have rsd in left foot and causalgia in right foot. My question is.....what the heck is it? Aside from intense burning pain, not minimizing that at all, really, everyday I tell myself not to sweat the small stuff, and it is what it is, but really scientifically they don't know what it is!!!! Alot of assumptions....oh well just thought I would throw that out there.

Jeanie

Hi Jeannie,

The answer to your question is.... PAINFUL.

I'm not a doctor so I can't answer your question any further.

I'm not sure that knowing exactly what it is is going to help our situation. We will still be in pain. I'm just sorry for those out there that aren't finding a solution to their pain and aren't able to live their lives with some sort of normalcy. Maybe that's what started the negativity in this thread.

Dear dealingwithTOS:

This thread was begun by me. It is plain and simple that I had still do have negative feelings the way this 1 min. blip was handled..nothing more, nothing less... its merely my opinion. Further, I dare say that I am probably one of the more optimistic, pain med free RSD patients who carry on dialog on this forum.. everyone has the right to say their peace and I would appreciate you not questioning the intent of my thread.

Kathy

Wow girl, settle down, dealingwithtos' opinion has some merit to it. By you getting upset and enraged is not good for your pain!!!! THAT'S bottom line. Living in the moment is what we have. First and foremost, find a doctor to go on national television with us and explain this ugly illness....that probably won't happen and that is where our problem begins. They can't explain it, its from an unknown origin...right? We all know that living in our moments can be excruciating some days, and we have to all have a place where we can go to manage our condition. Some go to a dark place, been there, don't want to go back, and some just learn to make pure wholesome peace, regardless of the illness. That is okay. I admire you for fighting for us, but you may want to try Montel Williams, who also suffers from a debilitating disease, maybe he has a great doctor on board who could shed some light on this and give this illness a fair shot!!! Cool down my friend, if CNN does not respond to you look for another open door. I mean, am I willing to go on national television and show my mangled foot and leg just for air time? It probably won't change anything, except it would leave me feeling worse about myself than I already do. However, if we had the proper equipment, such as a stand up doc, to explain the response to this disease, and possibly some great solutions then I would take one for the team! God Bless You All!!!!

KS, start paddling, it will burn some of that energy, and Screw Larry King!

Your Pal, Jeanie

Sooooo, exactly what is her obligation? Is it like, how is your pain today, and how does that make you feel type thing? Tell her exactly how you feel every moment of every day, tell her about the debilitating pain that you have to live with because they will not give you your American Right, tell her the effects this has on you as a wife, mother, human? Tell her they euthanise dog's in America for this type of torture!!! (No punt intended, I love my dogs).
ask her if she has a family, a job, a life, ask her if she enjoys her freedom to choose, ask her how she would respond to your situation. Tell her what she needs to hear not what she wants to hear.

Jeanie