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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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02-01-2007, 01:20 PM | #21 | ||
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I hope you find a good derma.My heart goes out to you.Please do post and let
us know.You seem to be in good spirits.A positive is a +. siccy |
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02-01-2007, 01:47 PM | #22 | ||
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Lisa,
This could be anything. I hope they get to the root of the problem. Hugs, Roz Last edited by buckwheat; 02-02-2007 at 08:48 PM. |
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02-01-2007, 02:21 PM | #23 | |||
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Roz...a biopsy for what? For these? Oh hon...is there sopmething you need to talk about?????
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Hugs, LisaM ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~ Visit My Message Board - Helping Custodial Parents Collect Child Support From Deadbeats for 7 Years . ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~ right Side TOS Decompression Surgery 12/2005 RSD Exacerbated after surgery Still have TOS on left side RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist |
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02-02-2007, 12:24 AM | #24 | ||
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Could be off the beaten path
Last edited by buckwheat; 02-02-2007 at 08:47 PM. |
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02-02-2007, 02:45 PM | #25 | |||
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Lisa -
In addition to the other references I sent you last week, you might want to check out the attached story form the Harvard Gazette on the work of Anne Louise Oaklander, MD, PhD, who has found interesting changes in skin (nerve densities) on the opposite side of the body - a mirrored imaged as it was - from that part of the body where the injury had been sustained. For your consideration: Pain produces mystery nerve losshttp://www.news.harvard.edu/gazette/...6/01-pain.html Dr. Oaklander's recent study, "Evidence of focal small-fiber axonal degeneration in complex regional pain syndrome-I (reflex sympathetic dystrophy)," 120 Pain 235–243 (2006), can also be found on my favorite webpage, the RSDSA Medical Articles Archive. Click here http://www.rsds.org/2/library/articl...ive/index.html and scroll down for an alphabetical listing of the study - by author- under the heading of "Research." take care, Mike |
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02-02-2007, 02:52 PM | #26 | |||
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I scar very easily. Last summer I got some mosquito bites on my foot, and I can still see them. Just not even a week ago I got a sore on my foot for no reason. I can't think of anything I would have done to get them.
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02-07-2007, 10:06 AM | #27 | |||
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are those pictures yours??
I will try and upload mine - (it is a relief though seeing the top one because thats what mine are like - but mine are apparently pressure sore things? dunno, that's what the DN's said). and the evil bum sore is back..... I just don't have the ability to stay still enough (or for LONG enough)to avoid my bum! grrrrr!! take care!! Rosie xxxxxxx PS - I use mag sulph and i am now using honey dressings, iodine spray and something or other ribbon to go in the pressure holes. (Calkostat?)
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It's always darkest just before dawn... but smile and the world smiles with you, cry and you cry alone |
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07-29-2007, 01:08 AM | #28 | ||
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Thanks Mike,
I haven't been on here much as have been busy with the other health issues i have and so i hadn't really looked closely at the links you provided re the mirror image small nerve fibre loss study etc, .... perhaps something in this explains something affecting me now that is puzzling to the medical community regarding ears (don't mean to be obtuse here but this is an rsd site so i don't really want to clutter up here with other things I have as some of it's kind of rare but i simply wanted to say thanks as my rsd came first as far as i know and other stuff came later but maybe there is a connection and i will be mentioning this to a couple of my docs) so again a big thank you... all the best, Ina |
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04-18-2013, 12:23 PM | #29 | ||
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Hi folks, Check out the relationship between sores that don't heal and spirochetes & Lyme Disease & Syphlyss (non-sexual transmission..
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04-18-2013, 03:54 PM | #30 | ||
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Hi,
My CRPS has recently got a lot worse in my foot, and right on the end of my big toe, just under the end of the nail, I have a purple area of skin about 5mm round. When my foot is really cold it looks white, and when my foot is red and hot it looks a darker purple. It's really sensitive and causes me the worst of the pain at the moment because socks and shoes, and bed sheets etc all touch it. My physio doesn't think it's a big deal, but I'm worried it could turn in to a sore or something. Am I worrying about nothing? Is it a 'normal' (ha) CRPS symptom on my skin? Is there anything I should or shouldn't do?! Any thoughts gratefully received. Thanks! Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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