Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-24-2007, 09:23 PM #1
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Hey Rosie,

- really, you are a very funny woman (amusing, I mean) - your poor sister

I must try that approach. Usually, because absolutely no one gets it, I just say it's a nerve disorder, like having nerve toothache all the time in my arm...have you noticed the glazed look in people's eyes if you say "Reflex Sympathetic Dystrophy"

all the best!
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Old 01-24-2007, 09:26 PM #2
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Quote:
Originally Posted by frogga View Post
Hey

Wow - well I wish I knew that one! unfortunatly I don't... any ideas would be brill! When I'm being mature I tend to say that I have a disease that is a rheumo- neuro condition - where my joints don't work properly because the movement parts of my brain are over written with pain signals so my nerves don't send out the right messages.

Then again - if I'm being immature - then it's far easier ..

"well.. I fell out of a plane"
"the raging bull hit me really hard and I must have flown 50 ft!"
"honestly... this is what happens when you let your sister drive the car"
etc...

it can be fun and so less anooying thant rying to explain it!

Rosiexxxxxx
LOL, Rosie!

If only people realized how serious the condition really is.


Quote:
Originally Posted by artist View Post
Hey Rosie,

- really, you are a very funny woman (amusing, I mean) - your poor sister

I must try that approach. Usually, because absolutely no one gets it, I just say it's a nerve disorder, like having nerve toothache all the time in my arm...have you noticed the glazed look in people's eyes if you say "Reflex Sympathetic Dystrophy"

all the best!
Yes, Artist! I have noticed...
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Old 01-24-2007, 09:34 PM #3
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LOL!!!!

seriously - try it - it works brilliantly! so much better than trying to give some random acquaintance the full medical history (and in October 2003 I saw my GP who increased my tablets.. but then in November he added DF118s etc...)

there are so many different things you can use as well (depedning on who you want to impress)..

buildings are always good (falling/ them falling on top of you etc0
ladders (over, under, off of)
driving (sisters, sheep, monkeys, other cars driven by any of those)

etc etc

........and you get to realise if they were really listening or only asking to be polite (when they just go poor thing or something after you told them about your brave fight against the three gorillas that were trying to steal your purse who then beat you up with 10ft banana trees - then they aren't listening)

Rxxxxxxxxxxxxxxxx
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Old 01-24-2007, 09:53 PM #4
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Teeth You are making me laugh, and laugh, and laugh!!!

Oh!, you are making me laugh so hard, Rosie!!!!!!!!! I am cracking up reading your posts!

On a serious note, I have started making up a little brochure/ card to tell about RSD. Maybe I should work on that... then, if people are really interested they can read it.

Oh, I did tell someone they should look up RSD or CRPS on google... I dunno if the guy did or not, but later on he was asking me more about RSD... he seemed genuinely interested in it.

Some people don't know what they're asking when they ask "what happened to you?". A LONG story!
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Old 05-03-2010, 09:27 PM #5
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You crack me up...thats sooooo good
I too use responses...what ever you think of at that particular moment. This is great. I even can get confused is it the FM or the RSD

Quote:
Originally Posted by frogga View Post
LOL!!!!

seriously - try it - it works brilliantly! so much better than trying to give some random acquaintance the full medical history (and in October 2003 I saw my GP who increased my tablets.. but then in November he added DF118s etc...)

there are so many different things you can use as well (depedning on who you want to impress)..

buildings are always good (falling/ them falling on top of you etc0
ladders (over, under, off of)
driving (sisters, sheep, monkeys, other cars driven by any of those)

etc etc

........and you get to realise if they were really listening or only asking to be polite (when they just go poor thing or something after you told them about your brave fight against the three gorillas that were trying to steal your purse who then beat you up with 10ft banana trees - then they aren't listening)

Rxxxxxxxxxxxxxxxx
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