Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-01-2010, 09:21 AM #1
stressedout stressedout is offline
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stressedout stressedout is offline
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We are going to have a real tough funeral to attend. Alot of distant family and people there do not know or understand what is wrong with my hand/arm and give hugs. OUCH! My husband came up with the idea last night that maybe I should where a sling, then I have a visible problem. Do any of you do this? Other ideas?
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Kakimbo (05-02-2010)
Old 05-02-2010, 10:18 PM #2
LIT LOVE LIT LOVE is offline
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Originally Posted by stressedout View Post
We are going to have a real tough funeral to attend. Alot of distant family and people there do not know or understand what is wrong with my hand/arm and give hugs. OUCH! My husband came up with the idea last night that maybe I should where a sling, then I have a visible problem. Do any of you do this? Other ideas?
Freezing your arm is a BAD thing. It was something I instinctually did afrter the RSD kicked in and before I was diagnosed. (It took hypnotherapy to break me of it.) It will just make your pain go up higher to your shoulder, and down your back. And people will be more likely to TOUCH a limb that has signs of injury. Keep your hubby on the side of your effected limb as a barrier. If someone goes to shake your hand, give them your "good" one. I shake with my left to everyone's confusion. I give one sided hugs. Your relatives will have to know sooner or later. If you can't stand to be touched, a quick "sorry, I can't, nerve pain..." works. If lidoderm patches work for you, slap on a couple and wear long sleeves. If you use pain meds, take them beforehand, so you're at a lower pain baseline when you arrive.
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