NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Denied (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/119438-denied.html)

Quote:

Originally Posted by keep smilin (Post 644968)

Lisa...
I am very sorry for your denial...I understand your dissappointment is in that we open our selves up for any intervention possible..and being denied takes it out of our deserving hands... allowing us the decision is one hting but for them to say.. No!! That is a horse of a different color..I have a SCS..I ma wired but did not get good results and had spread so honey..I hope this helps you.... Plus your comment about the vet made me roll..You brought a fun smile to my face..Hang in there..possibly the SCS was mean't to happen for you...Take care and have faith..

hugz, Kathy:grouphug:

hi, i just got approved for the trial. i'm type 2 and my pm told me that type stays in the injured area. i'm really very concerned about scs. can you please tell me a bit about your rsd before the scs and what happened? if that's ok...thanks!

Glad to share. I fell at work and sustained a severe distal radius fracture. After 8 surgeries the pain was still severe and that was when the ortho doc decided it was RSD.
I was referred to the PM doc associated with the ortho practice. She pushed increasing amounts of pain meds until I switched to another PM doc about a year ago. The new doc then did 3 nerve root injections and I had very short windows with some relief and harsh side affects. He then recommended a SCS. I have had the psych eval, and then Worker's comp denied the procedure. Since the first of the year my pain areas have spread from my entire left arm to my left shoulder, neck, head and ear. My blood pressure is beginning to be high, my heart is acting up and I am having some pretty ugly kidney pain. I also have severe depression. Currently unable to work. I do not know what plan F is going to be, I just know that I am too tired to fight the system anymore. The link here to SCS is very helpful for some real life experiences with this device and things to consider. I hope you have great success with this device and look forward to further postings from you. Blessings, Lisa

Quote:

Originally Posted by Lisa in Ohio (Post 644786)

Well I don't have to worry about the SCS anymore. WC denied it entirely. Does anyone know of a good vet??

So sorry Lisa. WC has no one to answer to. They write the rules, they answer thier own appeals. It sucks. Private health care, while it is stil around, at least has an appeals process in addition to direct litigation for benefit neglect. Perhaps you can legitimately determine that WC is not at fault so you can get better care thru your own private insurance??? Just a thought...