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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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04-17-2010, 08:45 PM | #1 | ||
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Grand Magnate
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Just wondering, I have several for my left shoulder which has developed RSD.
I have.... 1. triple numbing cream with lidocaine, tetracaine, benzocaine and some baclofen 2. DMSO, ketoprofen (?), baclofen and lidocaine 3. DMSO, Ketamine, gabapetin, ketoprofen Trying out to see what helps more. |
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04-17-2010, 09:46 PM | #2 | ||
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Member
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Hi Shelley, yes I have a compound that I use from time to time. Mine is lidocaine, ketamine and neurontin. It is very helpful but I mainly use it for flares or a really bad day. I think the next time I have it prescribed I am going to ask the doctor to add Magnesium, I have heard that is most helpful.
Best Wishes Jeanie |
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04-18-2010, 01:26 AM | #3 | ||
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Senior Member
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Were the ketamine/dmso compounded by a pharmacy or something your doctor makes ?
I have been considering buying some dmso online and making my own cream by crushing some of my Vicodin, but I'm concerned about an allergic reaction because I am allergic to sulfa. |
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04-18-2010, 03:28 PM | #4 | ||
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Grand Magnate
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Hi Finz,
All the creams are doctor prescribed and made by a compounding pharmacy. I bought some DMSO online with some aloe in it and it was too strong for me. Iit was flygirl who first recommended the creams to me. Her's has dmso, clonodine, gabapentin and ketamine in hers. I don't react well to clonodine. Jeanie, what a great idea, magnesium! |
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04-18-2010, 05:28 PM | #5 | ||
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Quote:
Wish I was more help.... take care, Hugz, Kathy |
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04-18-2010, 06:46 PM | #6 | ||
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Virtual hugs to you, my friend!
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"Thanks for this!" says: | keep smilin (04-19-2010) |
03-15-2011, 10:13 PM | #7 | ||
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Junior Member
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I'm new (today) to the cream theory. I have Ramsay Hunt syndrome (X 22 years...and counting) I have been frustrated with RSD in my neck and shoulder this last year and finally got refered to a pain specialist.
I hope to hear back from someone else who has Ramsay Hunt as I have never met any one else with it. |
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04-16-2011, 09:39 AM | #8 | ||
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New Member
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Quote:
Right now I am using C-Ketamine, Baclofen and Amitriptyline compounded into a cream, but it's losing it's effectivness over time and my Neuro and I are looking into different creams / gels that people have had success with. He's not an RSD "Specialist" per se, but he works with me and is willing to try anything new, which is great, and he is a close friend of Dr. Schwartzman and can call him anytime night or day. I've been treated by Dr S. since 2004, and now work through my local Neuro since he's only 20 minutes from me, and Dr. S is 3+ hrs away, but Dr. S is kept in the loop so to speak, and he calls my local Neuro when there's new things going on, or upcoming trials that may benefit me. Dr. S has been a godsend for me over the last 7 years. |
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04-16-2011, 10:53 AM | #9 | |||
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Not the OP, but the combo that I used was Ketamine/Clonidine/Imipramine/Gabapentin/Lidocaine (10/0.2/3/6/5%). Unfortunately I never did get a lot of help from it.
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04-16-2011, 11:09 AM | #10 | |||
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Member
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Quote:
I get a lot of relief from soaking, but it does limit your mobility. pat e
__________________
. Last edited by gramE; 04-16-2011 at 11:10 AM. Reason: because my brain, my fingers and the keyboard don't always agree. |
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