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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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04-17-2010, 08:45 PM | #1 | ||
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Grand Magnate
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Just wondering, I have several for my left shoulder which has developed RSD.
I have.... 1. triple numbing cream with lidocaine, tetracaine, benzocaine and some baclofen 2. DMSO, ketoprofen (?), baclofen and lidocaine 3. DMSO, Ketamine, gabapetin, ketoprofen Trying out to see what helps more. |
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04-17-2010, 09:46 PM | #2 | ||
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Member
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Hi Shelley, yes I have a compound that I use from time to time. Mine is lidocaine, ketamine and neurontin. It is very helpful but I mainly use it for flares or a really bad day. I think the next time I have it prescribed I am going to ask the doctor to add Magnesium, I have heard that is most helpful.
Best Wishes Jeanie |
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04-18-2010, 01:26 AM | #3 | ||
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Senior Member
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Were the ketamine/dmso compounded by a pharmacy or something your doctor makes ?
I have been considering buying some dmso online and making my own cream by crushing some of my Vicodin, but I'm concerned about an allergic reaction because I am allergic to sulfa. |
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04-18-2010, 03:28 PM | #4 | ||
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Grand Magnate
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Hi Finz,
All the creams are doctor prescribed and made by a compounding pharmacy. I bought some DMSO online with some aloe in it and it was too strong for me. Iit was flygirl who first recommended the creams to me. Her's has dmso, clonodine, gabapentin and ketamine in hers. I don't react well to clonodine. Jeanie, what a great idea, magnesium! |
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04-18-2010, 05:28 PM | #5 | ||
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Member
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Quote:
Wish I was more help.... take care, Hugz, Kathy |
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04-18-2010, 06:46 PM | #6 | ||
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Member
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Virtual hugs to you, my friend!
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"Thanks for this!" says: | keep smilin (04-19-2010) |
04-19-2010, 10:03 PM | #7 | ||
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Grand Magnate
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Was at the compundd pharamcy today. asked them about adding magnesium. They said they would look into it but that they were worried it might change the PH of the cream and interfere with the meds in it. Told the pharmacist I would also ask the doc.
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04-20-2010, 03:02 AM | #8 | |||
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Wisest Elder Ever
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You could buy the Kirkman cream and use it every other application. That way there would not be an interaction.
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"Thanks for this!" says: | Sandel (04-26-2010) |
03-09-2011, 06:54 PM | #9 | ||
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Member
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I use "Topricin" for short term pain relief. I add a few drops of pure peppermint oil to the lotion which also helps with the burning. My pharmacist recommended this product. I found the best price at vitacost.com. There are two types, regular and foot therapy cream, which is more expensive. I've tried both, and found that the regular works even better than the foot therapy cream. They both have just about the same ingredients. I get better results with the regular. I posted the ingredients below.
TOPRICIN®'s INGREDIENTS Topricin®'s patented combination of natural medicines is formulated to provide an array of benefits. Each ingredient passes through rigorous quality control procedure to ensure strength and purity. These superior ingredients effect their action while concurrently conditioning and moisturizing your skin. Topricin® does not contain petroleum, mineral oil, lanolin, menthol, capsaicin, fragrances, or irritating chemicals. The cream is odorless, non-greasy, and will not stain your clothing. Topricin®'s hypoallergenic base is formulated for maximum absorption of its eleven medicines. Arnica Montana - For injuries and bruising to the muscles and joints. Arnica is considered especially useful for arthritis, joint injuries, and bruising (6X) Rhus Tox - For sprains, arthritic pain, and backaches (6X) Ruta Graveolens - For relief from injuries to the bone or bone covering; often used to relieve trauma to the knee, shin, elbow and cheekbone (6X) Lachesis Muta - For relief from sciatica, arthritis, lower back pain and carpal tunnel (8X) Belladonna - Relief of pain, spasm & inflammation to muscle tissue (6X) Echinacea - Anti-inflammatory and anti-bacterial (6X) Crotalus - For improving localized circulation, and considered effective for bruises and contusions, and for accelerating repair to damaged nerves, joints, and muscles (8X) Aesculus - For chronic pain, especially in the legs & varicose veins. (6X) Heloderma - For relief from burning sensation in the hands or feet. (8X) Naja - Relieves inflammation and pain in nerve tissue in the treatment of Carpal Tunnel and neuropathy (8X) Graphites - For relieving symptoms of skin conditions (6X) |
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"Thanks for this!" says: | Grace and Peace (07-30-2011) |
03-10-2011, 01:10 AM | #10 | |||
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Member
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Shelley,
I have been on oral Baclofen for many years because I was born with Cerebral Palsy, but never knew that it came in a cream for RSD. I acquired RSD three years ago after a bout with a MRSA infection. I tried the lidocaine cream, but it didn't work at all. Changing the subject, I started laughing when I scrolled down and saw the pic of RR. I am from WV and everyone knows how we feel about him. Bryan Wright, one of the strength coaches for UM, is from the town I live in. He is a great kid and one of my husband's dearest friends. I really hope all goes well for the Blue this year. WV had much respect for the late Coach S. since he was best friends with our beloved Coach Don Nehlen. |
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