Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-23-2010, 08:11 PM #1
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
Thumbs up Week one of Ketamine has worked so far!!

Dear friends,

My first week of ketamine infusions has been fairly successful - about 75% of my pain has abated!! I truly feel blessed!! On my first day I noticed that I could tolerate being exposed to loud noises again, (although after a while I became agitated and wanted to get away from them). I can wear a bra strap over my shoulder for the first time since my injury in Nov 2006! I can lean back against my shoulder in the car and wear a seatbelt! The only area where I am still having some issues is the back of my head in the occipital area and deep within the shoulder itself. But I am really much better off than ever before. NO OTHER treatment has ever been as effective for me.

The side effects on the first few days were intense nausea, so more meds were added to my bag. Getson uses a different dose of ketamine for each patient. and his policy to not disclose to his patients how much ketamine they are getting so that they don't have any preconceived expectations.

The true test will be to see how well it holds, and whether it lasts.

Since it is the weekend, I have the next 2 days off. I've been too tired to walk much, and too confused to be able to read and comprehend the newspapers everyday or a good book. So I am looking forward to a few days of normalcy.

Thanks so much SandyS for your good wishes on Monday morning, and to everyone that replied, that was so, so nice. You guys are really Awesome!!

Much love and peace, Sandy
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"Thanks for this!" says:
AintSoBad (04-23-2010), fmichael (04-26-2010), RNcrps2 (04-24-2010), SandyS (04-23-2010), wswells (04-27-2010)
 


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