[miserable in wyomin]

im a single mom in wyoming with rsd for 5 years now. i have a spinal cord stimulator, which for me has helped a lot. The thing i cant seam to get under control are the thousands of tiny blisters that pop leaving holes and the severe dry, cracking skin. Does anyone else get the blisters from rsd?

[Jomar]

Oh, check out the RSD Photos and Pictures sticky thread -
http://neurotalk.psychcentral.com/thread16167.html

All kinds of bumps, rashes, swelling, etc...

[Rrae]

I am so very sorry about the pain issues you are dealing with. There are so many wonderful people here on the RSD forum. Maybe some will be able to give you feedback regarding the blisters! That must be completely maddening! I am so sorry!

We also have a forum specific to SCS/Pain Pumps..... here is the direct link
to click on:

http://neurotalk.psychcentral.com/fo...ysprune=&f=118

It would be great if you'd share your experience with your SCS on that forum.
So many people are looking into these units and have so many questions!
Where is your SCS battery located and what pain does it target.....? You said you are happy with yours so that is very encouraging to read.

Hope to see you there!

Rae

[Sandel]

Originally Posted by miserable in wyomin

im a single mom in wyoming with rsd for 5 years now. i have a spinal cord stimulator, which for me has helped a lot. The thing i cant seam to get under control are the thousands of tiny blisters that pop leaving holes and the severe dry, cracking skin. Does anyone else get the blisters from rsd?

This one breaks my heart.
http://neurotalk.psychcentral.com/thread16167-11.html

[Sandel]

Emu oil is suposed to help alot in clearing up the RSD ulcers and scars and I have spoken to people who it worked very well for as well.
~Sandra

[GJmom]

I have always used emu oil. It is amazing stuff.

[miserable in wyomin]

Originally Posted by GJmom

I have always used emu oil. It is amazing stuff.

Where can I get the Emu oil? My rsd foot is at all times 7-10 degrees hotter than the rest of my body, but Im willing to try anything..

[loretta]

Originally Posted by miserable in wyomin

im a single mom in wyoming with rsd for 5 years now. i have a spinal cord stimulator, which for me has helped a lot. The thing i cant seam to get under control are the thousands of tiny blisters that pop leaving holes and the severe dry, cracking skin. Does anyone else get the blisters from rsd?

Welcome to the group. I'm very sorry you have the blisters-many of us do. I call them red dots. The larger ones are lesions. It's important to keep them from getting infected. My Dr. had me sit several times a day in bath water warm,-not hot. dry off and clean them. Don't want to bandage them and get the infection spread.
This is a wonderful group of caring friends, willing to share and support. It is wonderful to not go this alone. Thank you for the information on the scs.
I've had this 15 years-full body and internal. I have the dry skin, use lotion, stay out of sun or us sun screen.
There is a website rsdrx.com that is good. The Dr. Hooshmand practiced RSD for 40 years now retired, but left his website up. Go to puzzles list, which is really 146 questions and his answers. Also the national organization RSDSA is good for information. Hope you stay with us and look forward to getting to know you, one of your new friends, loretta

[mrsD]

Hi, everyone.... I'd like to suggest that if applying Emu oil, topically is working some for some of you, that would be a signal that you are not consuming enough essential fatty acids in your diet to take care of your skin.

Our skin needs Omega-3 fatty acids to repair and maintain itself, as found in Flax oil, and in smaller amounts in some other vegetable sources.

I have a EFA thread here with information about that:
http://neurotalk.psychcentral.com/showthread.php?t=6092
For the body to use these beneficial fats it also needs magnesium and B6. Alpha linolenic acid as found in flaxoil, is also very good for acne and extremely dry feet. So please consider using the fats orally as well.

[wswells]

Originally Posted by mrsD

Hi, everyone.... I'd like to suggest that if applying Emu oil, topically is working some for some of you, that would be a signal that you are not consuming enough essential fatty acids in your diet to take care of your skin.

Our skin needs Omega-3 fatty acids to repair and maintain itself, as found in Flax oil, and in smaller amounts in some other vegetable sources.

I have a EFA thread here with information about that:
http://neurotalk.psychcentral.com/showthread.php?t=6092
For the body to use these beneficial fats it also needs magnesium and B6. Alpha linolenic acid as found in flaxoil, is also very good for acne and extremely dry feet. So please consider using the fats orally as well.

Hi mrsD, I have been meaning to get in touch with you, as I have a question that I had put out here and someone on the board told me that you would probably be able to help me out with I'm not going to go into much of my story right now except whats been going on with me lately.I am very new to this site but not new to RSD I have had it for 24 years, full body and within the last 2 years it went internal,heart lungs etc., but especially in my digestive parts and my intestines.The pain in my lower abdomin is so sever I don't know what to do. I had an endoscopy and a colonoscopy which showed I have erosive esophagitis and erosive colon . I have such a hard time going to the bathroom that I have to take some kind of laxative almost of the time. Well I just read in a book that if you take Magnesium Citrate Capsules starting with 150 mg daily after evening meal, and to increase it by 150mgs every other day up to max of 1500 daily and to take it with P5P Activated B6 It will work so well that after 2 weeks of use you will not have this problem anymore. Have you ever heard of this for this reason, because it also said it would help with many of the other problems we have. I would really appreciate hearing from you. Thanks for listening and hope you have an answer. Your friend Wendy