Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 04-24-2010, 11:37 PM #11
Rrae's Avatar
Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Thumbs up Thanks Mike :)

Yeah, I BET Dr W is gonna try the 'CYA' tactics......and that's why I'm wondering about the repeated calls to the colleague (the Ortho) to perhaps try and find suggestions/tools he can use in his favor.....?
But the legalities aren't in our hands.......we're here for Bobber....
I do think the 'journaling' thing is good idea, to be used in B's favor if this turns into a nit-pickin detailed play-by-play........
It's obvious Dr W messed up. One of the first things that peeved me was reading about the 'placebo' trial to see if there is 'malingering' going on! OMG

That right there showed me what this Dr "W" is made of and where his priorities lie...................man, I'm ticked about this!!
...........*deep breath*........

Well, for the sake of 'Keeping the Faith', i'm gonna put on my happy face and Trust God......I bet that's what Bobber would be typing to us if he were able to type.....
......praying for this to turn around........
I'm sure he's got his family and support system right there with him.......
Very anxious to hear how the Ketamine goes!!
At least he's finally getting put on the 'A' list of healthcare priorities!

You da man, Bobber....YOU da bomb! (.....he said that to me in a pm a while back...... )


Rae
Rrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kakimbo (05-01-2010)

advertisement
Old 04-25-2010, 12:17 AM #12
hope4thebest hope4thebest is offline
Member
 
Join Date: Jan 2009
Posts: 305
15 yr Member
hope4thebest hope4thebest is offline
Member
 
Join Date: Jan 2009
Posts: 305
15 yr Member
Default

Mike,
We are so grateful that you took the initiative to give Bobber a call..I know Bobber must be grateful to have the support, love, and understanding with him as he goes through this medical nightmare.

It is a horrendous thought to realize what Bobber endured..and unforgivable that the doctor attempted a block without flouroscopy! What was he thinking..why did he take such a risk..and to inflict a procedure on Bobber without Bobber's consent..It sounds like some sort of Dr. Frankenstein experiment.
Please sent Bobber all our prayers and love with hopes that the ketamin treatments can restore comfort and painlessness to him..
Sending love, more love and prayers to you, Bobber.
Hope4thebest
hope4thebest is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kakimbo (05-01-2010)
Old 04-25-2010, 07:12 PM #13
SandyS SandyS is offline
Member
 
Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
SandyS SandyS is offline
Member
 
Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
Default

Thank you Mike for calling Bobber, as I read this I cried for him. It is unbelievable that something so barbaric can happen in this day and age. Please let him know that we are lifting him up in prayer. I am also so relieved that he is receiving ketamine Infusions. Again Thank you for letting us know.
Sandy
SandyS is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kakimbo (05-01-2010)
Old 04-26-2010, 12:09 AM #14
fmichael's Avatar
fmichael fmichael is offline
Senior Member
 
Join Date: Sep 2006
Location: California
Posts: 1,239
15 yr Member
fmichael fmichael is offline
Senior Member
fmichael's Avatar
 
Join Date: Sep 2006
Location: California
Posts: 1,239
15 yr Member
Blank Just spoke to Bobber

He's reading your posts and appreciates them and your prayers more than anyone can know. He and his wife are doing everything they can to get him admitted to the best in-patient neurology program they can arrange, where he appears to have bigger fish to fry than simply stemming the spread of his RSD, as much as that is a concern.

Please keep them both in your hearts. Bobber draws strength from this community and hopes you understand that he's just not in a position to respond for the time being. Thank you one and all.

Mike
fmichael is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dubious (04-26-2010), hope4thebest (04-27-2010), Kakimbo (05-01-2010), mrsD (04-26-2010), Rrae (04-26-2010), Sandel (06-07-2010), SandyS (04-26-2010), wswells (04-27-2010)
Old 04-26-2010, 07:21 AM #15
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
Heart

Quote:
Originally Posted by fmichael View Post
He's reading your posts and appreciates them and your prayers more than anyone can know. He and his wife are doing everything they can to get him admitted to the best in-patient neurology program they can arrange, where he appears to have bigger fish to fry than simply stemming the spread of his RSD, as much as that is a concern.

Please keep them both in your hearts. Bobber draws strength from this community and hopes you understand that he's just not in a position to respond for the time being. Thank you one and all.

Mike
Dear Bobber...

Knowing that you are reading our posts..Please know this is exactly the time when your family here are pulling together more than ever for you...you are close to each of our hearts and we and sending powerful messages up on your behalf...May you draw strength and love from all of our thoughts and prayers..We ask God and know that God will give only what you can handle and the rest he will take care of. It is out of our hands...In the mean time we are all so fortunate to have you in our lives... allow us to fill your heart with love, trust and spirit... Don't stop until your get the best care out there for your situation...and again..I am so sorry this has happened to you.. you are such a nice man and dear friend to us all!!

Thanks, Mike....

Hugz always..

Kathy
keep smilin is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kakimbo (05-01-2010), Rrae (04-26-2010), Sandel (06-07-2010)
Old 04-26-2010, 05:07 PM #16
Mslday's Avatar
Mslday Mslday is offline
Member
 
Join Date: Aug 2008
Posts: 409
15 yr Member
Mslday Mslday is offline
Member
Mslday's Avatar
 
Join Date: Aug 2008
Posts: 409
15 yr Member
Default

Dear Bobber,

I'm horrified to learn of what has happen and want you to know that you are in my thoughts. I was happy to learn that you have good friends and loved ones to help you during this time of need. I wish you a very speedy recovery!

Mike, thanks for updating us all on the situation with Bobber I'm sure he appreciates your help very much.

Warm wishes.

MsL
__________________
"When humans learn to be gratefully present every moment, they become angels. It’s not the wings that make the angel, but the message of courageous presence and creative acceptance, no matter what the moment brings: “Fear not!”" Gratefulness.org
Mslday is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kakimbo (05-01-2010)
Old 04-26-2010, 06:38 PM #17
Tiff Tiff is offline
Junior Member
 
Join Date: Dec 2009
Location: Texas
Posts: 28
10 yr Member
Tiff Tiff is offline
Junior Member
 
Join Date: Dec 2009
Location: Texas
Posts: 28
10 yr Member
Default

Bobber -

You don't know me but I've read several of your posts and draw strength from every one. I'm sorry that this had to happen to you and hope that you find an in-patient Neurological unit soon. Please get better and let us know if there is anything we can do. You are in my thoughts and prayers!!

Tiff
Tiff is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kakimbo (05-16-2010)
Old 04-26-2010, 08:44 PM #18
Sandel's Avatar
Sandel Sandel is offline
Member
 
Join Date: Oct 2006
Location: Western Canada
Posts: 844
15 yr Member
Sandel Sandel is offline
Member
Sandel's Avatar
 
Join Date: Oct 2006
Location: Western Canada
Posts: 844
15 yr Member
Shocked ohh no!

Good freakin lord.. that IS criminal!!
Bober Buddy hugs bud, healing hugz, I'm lighting candles for you my friend, one for your fast healing and one for hope.. hope for your future with this new treatment
~ Sandra
Sandel is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kakimbo (05-16-2010)
Old 04-26-2010, 09:01 PM #19
Sandel's Avatar
Sandel Sandel is offline
Member
 
Join Date: Oct 2006
Location: Western Canada
Posts: 844
15 yr Member
Sandel Sandel is offline
Member
Sandel's Avatar
 
Join Date: Oct 2006
Location: Western Canada
Posts: 844
15 yr Member
Default Hmm networking?

Quote:
Originally Posted by fmichael View Post
He and his wife are doing everything they can to get him admitted to the best in-patient neurology program they can arrange, where he appears to have bigger fish to fry than simply stemming the spread of his RSD, as much as that is a concern. Mike

Hi Mike what area or state is he in?
Thanks
~Sandra
Sandel is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kakimbo (05-16-2010)
Old 04-27-2010, 12:31 AM #20
hope4thebest hope4thebest is offline
Member
 
Join Date: Jan 2009
Posts: 305
15 yr Member
hope4thebest hope4thebest is offline
Member
 
Join Date: Jan 2009
Posts: 305
15 yr Member
Default

Dear friend Bobber,
We are with you every moment of the day as you try and unravel the situation you're in! There are people on your side who are going to advocate for the best medical attention you can receive.
We are sending you all the inspiration, love, friendship and prayers that you have always shared and provided for us!
Bobber, we are here for you and send our healing love and prayers!
Hope4theBest

Thank you Mike You are indeed a very good friend..
H4tb
hope4thebest is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kakimbo (05-16-2010)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Spinal cord Stimulator...Bobber look!! keep smilin Reflex Sympathetic Dystrophy (RSD and CRPS) 23 06-12-2011 08:57 PM
I miss you dad jme77 Coping with Grief & Loss 2 03-30-2010 05:31 PM
Did I miss something? Blessings2You The Stumble Inn 15 11-20-2009 09:25 PM


All times are GMT -5. The time now is 10:47 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.