Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-25-2007, 09:14 PM #1
debbiehub debbiehub is offline
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Default cant stop crying- arm muscles hurting

My arms constantly feel like i Just lifted a lot of weights- My wrists feel like they are going to crack and my hand is swelling, my feet feel like they are walking on glass

I am not on any pain meds and dont want to start but want to shoot myself- when and how will this end? (I know know one knows but I just cant take it!) I don't understand why good people have to suffer like this- Its just not fair

anyone have any ideas for the arm muscles- to relax them???

Thanks

Debbie
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Old 01-25-2007, 09:27 PM #2
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Dear Debbie

Firstly - hugs. I really hope things start to improve.

Can you stand hot water/ heat packs on your arms? laying them on fleece on pillows?

You will get through this.

Sending you lots of love and hugs

Rosie xxxxxxxx
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Old 01-25-2007, 10:14 PM #3
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Oh Debbie,

I am so sorry you are in pain

Have you seen a doc. Do you have a dx?

I know you do not want to do pain meds but keep in mind that pain retards healing. You need those arms to calm down. Can you try some Advil, Motrin or alleve just to start?

I hope your pain decreases.

We are here for you
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Old 01-26-2007, 01:13 PM #4
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Default Epsom salts

Epsoms salt bath may help - 2 cups of salt to 30 or more minutes of soaking, warmist water you can stand. I also try to move wrists, hands and arms in water once they calm a little for me usually about 15 minutes of soaking. The movement helps with reflex and swelling. I also squeeze washcloth over and over under water (like a ball)

Gentle hugggggggsssss!

Rain
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Old 01-26-2007, 03:26 PM #5
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Originally Posted by Rainbow422 View Post
Epsoms salt bath may help - 2 cups of salt to 30 or more minutes of soaking, warmist water you can stand. I also try to move wrists, hands and arms in water once they calm a little for me usually about 15 minutes of soaking. The movement helps with reflex and swelling. I also squeeze washcloth over and over under water (like a ball)

Gentle hugggggggsssss!

Rain
I agreee with Rain 100%

Epsom salts have magnesium in it and that helps the pain alot and can realy go along way to relax those muscles that are cramping and seizing up. Light some candles and listen to relaxing music.. be sure to inform the household not to disturb you for at least 45 minutes because you can find it heavenly an just wanna stay there.

I just keep adding more hot water.. lol

It's realy crapy this is happening to you Deb and I hope you are feeling better soon hon, I take baclofen for the cramping/seizing of muscles too.. but the epsom salts should be in the required self medications for RSD/CRPS treatment.

I sure hope you are feeling better soon,
Sandra
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Old 01-26-2007, 10:53 PM #6
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Default Thanks

Thanks for all your responses- I have tried heat but I will try the bath idea- I still work and worry so much about not being able to work- I dont know how we would survive

Deb
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Old 01-26-2007, 11:10 PM #7
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Hi Deb,
When I use Epsoms salts in the bath. I have to use about a 1/4 of a cup. I tried to use a full cup before and it made my heart race.

Also are you able to get enough sleep. I had a MD tell me it you have to get to the 4 levels of sleep before healing can begin in your body.
Big Hugs, Roz
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Old 01-31-2007, 12:14 PM #8
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Quote:
Originally Posted by debbiehub View Post
My arms constantly feel like i Just lifted a lot of weights- My wrists feel like they are going to crack and my hand is swelling, my feet feel like they are walking on glass

I am not on any pain meds and dont want to start but want to shoot myself- when and how will this end? (I know know one knows but I just cant take it!) I don't understand why good people have to suffer like this- Its just not fair

anyone have any ideas for the arm muscles- to relax them???

Thanks

Debbie
Debbie, did you get some relief hon? Sometimes contrast baths help, along with about 800 mg's of motrin. You can even put the epsom salts in the warm water portion of the contrast baths, but the warm/cold helps to expand and contrast the muscles and helps them to actually TAME believe it or not.
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right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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Old 01-31-2007, 12:29 PM #9
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Default Hi Debbie,

I'm sorry that you are having such bad days. I honestly don't see how you will get by without meds with RSD. I guess there are some that do but I think it depends on what stages they are in and how calmed down they have it. Mine is pretty calm except for a couple of places so I take Methadone for pain and I am on a very low dosage but I cannot do without it.

I just wanted to say on the warm water bath. Watch that you don't get it too hot. There are some that hot water makes the pain worse, I am one of them. I have heard others say so. Mine might be for other reasons but if I get my water too hot I go into a worse pain cycle.

Also get some heating pads to use for each arm. I found mine at the Goodwill and put new covers on them. They don't have to cost a fortune.

I don't remember if you have the TOS but that will keep you from getting any rest with those arms until you get help with that.

I do feel for you. I have seen those days you are having. I had years of them too. Crying and Screaming for help. My Dr. always told me to soak in a long hot bath and use heating pads. He was really pacifiing me until we got diagnoses. IT didn't help me that much but hopefully it will do you a lot of good.

Also watch with the Aleve. IT does help with the pain but it will cause you stomach problems if you take it too much.

Feel better soon.
Ada
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Old 01-31-2007, 05:35 PM #10
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Debbie I feel your pain I can remember when they (workers comp) took me off pain meds all meds and said nothing more can be done for you you are as good as you will get. So I was in pain like you I feel for you sorry you can make it I know you can till you get the help you need! I sorry for sp medatated alot listen to music and just did not move unless I had too, wich is bad because now I must use my affect parts, and learn to accept this monster and just do things in moderation but use my parts.
Debbie you will get the help and make it, I give soft hugs to you, and pray for you too.
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