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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   New & need help (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/120161-help.html)

Rrae 04-23-2010 10:56 PM

Skooz!
 
Quote:

Originally Posted by Skooz (Post 647363)
Neurostimulation can be a godsend to CRPS patients. There are two factors that will increase your odds of success with SCS - the depth of experience your physician has implanting SCS and the earliest possible point of intervention to your diagnosis of RSD. There was even one study that suggested that SCS can cause RSD to go into remission in some patients.

My RSD was so aggressive that I was bedridden within a year with two extremities involved at Level 10 pain. I was fortunate to be in the care of a top pain center but failed all treatments, including several experimental protocols. They recommended I be fast-tracked to SCS by, interestingly enough, not them, although they performed SCS, but by a top physician who was an expert in SCS.

They referred me to an expert who implanted a trial within two weeks. My permanent SCS has been installed for six years.

You will know instantly on the operating table when they perform your trial whether the SCS will mediate your pain. The trial is not perfect, but will give you an idea of the potential.

SCS does not eliminate CRPS, but it enables me to live with the help of meds. The faster you are able to pursue it, the greater potential benefit it has due to the way CRPS develops.

The other factor to be sure to evaluate are the two SCS vendors, ANS and Medtronix. Their products differ and one may be better for your long-term needs than the other. Typically, a given doctor only works with a single vendor. Vendor selector may impact your choice of surgeon. It is easy to become educated through the vendors websites and forums like this.

I wish you improved health. I hope that your pain doctor can help you on this path!

That is absolutely FANTASTIC information!! Sure wish we could copy this info over on to the SCS/Pain Pump Forum ! This would help to answer alot of questions being asked over there....

Thank you for this!
:hug:

sweetscnts17 04-26-2010 08:11 AM

Some releif
 
Hello all,
Thank you all for your responses...The day I posted that I went to my back Dr to get the results of my MRI and CAT scan.Well the Dr wanted to have surgery done again,I was very hestiant to do this ,I called my Pain Dr and he agreed that I should go ahead with the surgery (due to the fact that I had no muscle control in my leg)
So I did go ahead with the surgery on Friday and the Dr found a peice of bone in my cage where the fused my L4 & L5 ,also there was alot of scarring.
As of today my leg and foot are feeling a bit better just a little bit of burning and tingling.Im hoping it stays this way.As my first sign of burning and tingling wasnt until 5 days after my 1st surgery.Thank you all for your support I really appreciate it.
Thanks,Val

finz 04-26-2010 10:02 PM

I hope the worst is behind you now and you will heal well

sweetscnts17 05-04-2010 09:12 AM

Foot pain back
 
Good Morning all,
Well its been almost 2 weeks since my last back surgery and slowly but surely the pain has come back in my foot .I was so happy after the surgery and thought this was the answer to my problem.
Im now more confused than I was before,I have spoken to another pain mang Dr and he agreed that I have CRPS.
So now what?If anyone can give me some advice on what to do now.Im thinking maybe I should try the pain blockers again and hope that they will last more than 3 days.This is sooo frustrating .I will try to get as much info as I can about CRPS but Im hoping I can get some info from this site as well.
Thanks all,
Val:confused:

Twinkletoes 05-04-2010 09:29 AM

Aww, Val, I'm so sorry the pain is returning. Your post last week was so encouraging and optimistic. :(

I'm so sorry. I do hope you are able to get something that helps with the pain. Be well and keep us posted on your progress. :hug:


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