Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-01-2010, 12:41 PM #1
wswells wswells is offline
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Default Help, I need info. on hyperaric chambers.

Can anyone out there please explain how the hyperbaric oxygen chambers help people with RSD I've had it since 1986 and the first I've heard of it was when I found this website. I have a great Dr. down here in Fl. and have seen Dr. Schwartzman in Philly, none of my Dr.'s have ever mentioned it , they have talked to me about the pump, DCS and other ways of treating the RSD,but nothing about the chamber. They told me the RSD is full body, inside and out I've had hundreds of nerve blocks ,3 sympathectomies, TOS and just about everything else, to a point that my neurologist told me I am to be palliative care only,nothing invasive. Well the chamber is not invasive. How does it work? And does it work or help? Thanks for any responses in advance. I look forward to hearing all about it. Still in pain. Wendy
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Old 04-01-2010, 12:50 PM #2
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Originally Posted by wswells View Post
Can anyone out there please explain how the hyperbaric oxygen chambers help people with RSD I've had it since 1986 and the first I've heard of it was when I found this website. I have a great Dr. down here in Fl. and have seen Dr. Schwartzman in Philly, none of my Dr.'s have ever mentioned it , they have talked to me about the pump, DCS and other ways of treating the RSD,but nothing about the chamber. They told me the RSD is full body, inside and out I've had hundreds of nerve blocks ,3 sympathectomies, TOS and just about everything else, to a point that my neurologist told me I am to be palliative care only,nothing invasive. Well the chamber is not invasive. How does it work? And does it work or help? Thanks for any responses in advance. I look forward to hearing all about it. Still in pain. Wendy
Wendy..
I a msorry for your advanced RSD..I know Loretta is well versed and waiting for the HBOT intervention... My Dr. here at home mentioned it to me and she ran right out to call our local medical center to ask if I would be a candidate..but she told me unfortuantely..I am not..reason being my RSD is too advanced, 3 yrs. into RSD, whole body plus internal... so I can't have it...I hope others are able to help you more...have a great day,

Kathy
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Old 04-01-2010, 01:03 PM #3
wswells wswells is offline
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Wendy..
I a msorry for your advanced RSD..I know Loretta is well versed and waiting for the HBOT intervention... My Dr. here at home mentioned it to me and she ran right out to call our local medical center to ask if I would be a candidate..but she told me unfortuantely..I am not..reason being my RSD is too advanced, 3 yrs. into RSD, whole body plus internal... so I can't have it...I hope others are able to help you more...have a great day,

Kathy
Hi Kathy, I wonder if that is why none of my Dr.'s have ever mentioned it to me because I too am also very advanced with my RSD? Who knows! I see the Dr. next week and I am going to ask him about it. Where are these chambers even located, at hospitals ,certain clinics ? thanks Wendy
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Old 04-01-2010, 01:13 PM #4
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Hi Kathy, I wonder if that is why none of my Dr.'s have ever mentioned it to me because I too am also very advanced with my RSD? Who knows! I see the Dr. next week and I am going to ask him about it. Where are these chambers even located, at hospitals ,certain clinics ? thanks Wendy
Hi Wendy,
I have full body RSD since 1989 and I have been diving (HBOT) since 2005. I now have a HBOT chamber. I am also a advanced rescue diver with a Nitrox certification...with a fairly good understanding of oxygen under pressure, the benefits and the possible negative effects. It is currently my treatment of choice, however with family issues, it has been a while and I currently need to get it in.
I will try to pm a message with my number...as I am on the way to Colorado. My father is in the hospital...critically ill. Maybe we can chat or I can get an email off on my lay overs.
Must run..leaving tomorrow.
Hugs di
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Old 04-01-2010, 02:51 PM #5
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Originally Posted by wswells View Post
Hi Kathy, I wonder if that is why none of my Dr.'s have ever mentioned it to me because I too am also very advanced with my RSD? Who knows! I see the Dr. next week and I am going to ask him about it. Where are these chambers even located, at hospitals ,certain clinics ? thanks Wendy
wendy..I believe they are at the hospitals..ressemble and MRI kinda tube apparatus with a little door for ventalation on the side..saw one on a show on T.V the other day..
I hope it is not too late for you also..hang in there, my friend ..don't stop trying everything...

Hugz, Kathy
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Old 04-01-2010, 03:58 PM #6
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Wendy
I recently found on line and personaly spoke witha representative about portable dives..Im not sure of the degree of benifit ,although I was told they do carry a 1.5 pressure rate, and a mini dive starts at 5,000 and they have payment plans,,I am considering this option after I do more research on [soft dives] verses solid dives,,But in my opinion, I believe alittle compressed oxygeon is better than none. They do make different sizes..But I was interested in the mini[enough to lay down in],to get the benifit,,,anyone on the board who has knowledge or expeinece with these ,please chime in,,,thank you
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Old 04-01-2010, 05:47 PM #7
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Check out the RSDSA.org website for research articles on HBOT. (Use the search feature).

XOXOX Sandy


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Wendy
I recently found on line and personaly spoke witha representative about portable dives..Im not sure of the degree of benifit ,although I was told they do carry a 1.5 pressure rate, and a mini dive starts at 5,000 and they have payment plans,,I am considering this option after I do more research on [soft dives] verses solid dives,,But in my opinion, I believe alittle compressed oxygeon is better than none. They do make different sizes..But I was interested in the mini[enough to lay down in],to get the benifit,,,anyone on the board who has knowledge or expeinece with these ,please chime in,,,thank you
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