Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-25-2010, 09:26 PM #1
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babs74 babs74 is offline
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Default New docs, New prob

Well folks, Finally found a new Pm doc and gp doc. Went to pm doc and he said there isnt much he can do for me but is super willing to help.. wants to do a series of blocks. Put me back on my tizandine to get used to it with the lyrica and then he will change it..Also said had muscle deteoration in the neck and calcium build up in my neck. So he did some steriod shots in my shoulders.(2 in left, 1 in right). made this so much worse. couldnt move neck or left shoulder all week very well. ( Shots hurt like hell) He ordered Mri of neck..get results first of this week.. I believe its the crps.. we will see.. So the gp says she has dealt with crps before and is willing to help also manage my pain as well. also gave me reglan for nausea. which so far has worked wonders. she is filling out my loa papers for work..tired of them messing with me.. If i cant hardly move then obviously then i cant be lifting anything.. So going to do some serious therapy while I am off for the 2 weeks and get moving again.. might be 3 weeks.. we will see how long it takes..if i had something for pain would be easier.. gp wants to see how reglan does before adding anything else first.. wants to take it slowly at first.. so it dont just put me to sleep all the time..which i love..lol..
ok. just wanted to keep ya all posted..


by the way: with the topamax i have lost a total of 15 pounds. since february.. not great, but not too bad either..
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Old 04-26-2010, 01:13 AM #2
loretta loretta is offline
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Quote:
Originally Posted by babs74 View Post
Well folks, Finally found a new Pm doc and gp doc. Went to pm doc and he said there isnt much he can do for me but is super willing to help.. wants to do a series of blocks. Put me back on my tizandine to get used to it with the lyrica and then he will change it..Also said had muscle deteoration in the neck and calcium build up in my neck. So he did some steriod shots in my shoulders.(2 in left, 1 in right). made this so much worse. couldnt move neck or left shoulder all week very well. ( Shots hurt like hell) He ordered Mri of neck..get results first of this week.. I believe its the crps.. we will see.. So the gp says she has dealt with crps before and is willing to help also manage my pain as well. also gave me reglan for nausea. which so far has worked wonders. she is filling out my loa papers for work..tired of them messing with me.. If i cant hardly move then obviously then i cant be lifting anything.. So going to do some serious therapy while I am off for the 2 weeks and get moving again.. might be 3 weeks.. we will see how long it takes..if i had something for pain would be easier.. gp wants to see how reglan does before adding anything else first.. wants to take it slowly at first.. so it dont just put me to sleep all the time..which i love..lol..
ok. just wanted to keep ya all posted..


by the way: with the topamax i have lost a total of 15 pounds. since february.. not great, but not too bad either..
Hi Babs, Congrats on your 15 lbs. I am determined to loose some weight from meds and inactivity. I've started walking and basically on a weight watcher eating program.
Babs, I think the physical therapy is a great step forward. As painful as it was, I am so glad I went forward with it. I did take a pain med before the therapy. That's all-just before the treatment. I also did a 60 minute light massage to warm up my muscles and make further progress in the physical therapy. It took 100 treatments each to get full range of frozen shoulder back following breast biopsy. Went into remission, but they told me it might go to other shoulder. After a year, it did, more therapy. another remission. Water skiing, pulled nerve in hand- missdiagnosed- changed Drs. and diagnosed RSD- This is 4 years following breast surgery. I have full body now, but so greatful I can cut my food, dress myself etc. My hand only got 50% range of motion because of delay. After 15 years I just take 4 viocidin a day 4 lorazepam, 120 mg cymbalta high blood pressure meds, sleep med. I'm starting to walk more and trying to stay mobile. I have lots of problems due to the progression, but happy with mobility. Have internal pelvic area. Lung issues, and possible sleep apnea. The last 6 years I've had a marvelous Dr. who has gradually got me on the right meds one at a time, and off of several others meds. He is neuro and pharmacologist, and psychiatrist. My mental well-being has great improved from his help. This is not an easy disorder, but we can improve and have a lot to be grateful for.
Take care, and let us know of your progress. You are in charge of your health, if this is a WC issue- you may need an attorney to get the medical help you deserve. This isn't a 2 month issue and then resolved. A year or so my toes started curling off the floor-my Dr. had me get in our pool every day and do exercises. After about 4 months, the toes were touching the ground again- I still work both hands with gel ball, keeping my fingers as limber as possible. The right hand is very good, and the left hand is still partial.
Please let us know how you are doing. One of your new friends, loretta
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babs74 (04-28-2010)
Old 04-28-2010, 09:06 PM #3
SandyS SandyS is offline
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Hi Babs,

I am happy to hear that you have two doctors helping you finally. I hope all works for you. AWESOME about the 15 big ones! Congrats. I will be praying for you. Keep positive.

Sandy
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