Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-06-2010, 11:32 AM #11
birchlake birchlake is offline
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Quote:
Originally Posted by DMCACHEN View Post
I am new here and I know it is rude to start right in with questions but I was wondering is anyone has tried this for the constaint pain? The main site of my RSD (I do not know if that is the right terminology) is in my foot cause by having my old boss drop a 500 pound cabinet on my foot while we were moving offices. I also have muscle spasms all over my body as well as other issues.
I had a physical with my GP and while he does not know much about the RSD (I am the first time he had ever heard of it) he thinks the neurontin may help with the constaint pain. After 3 years, I really don't want to get my hopes up again but for the last 6 hours all I can do is daydream about returning to a life that I enjoy. I would rather dash the hopes now and be pleasently supprised later if it works than get all excited and then get knocked down again.
Thanks in advance.
D
From patients and professionals I have had experience with, neurontin is often the FIRST drug tried for suspected RSD.

I have RSD in my foot (specifically my big toe) and I take 1800 mg of neurontin a day for my "mild" RSD. It has worked very well.

My side effects are limited to a bit of drymouth and a little drowsiness, both of these side effects have lessened over time. My podiatrist tried weaning me off the neurontin and the pain came back, slowly....but within a few weeks. Life WITH neurontin for me is much better than without it!

Getting another opinion is always a good idea because of the rarity of the disorder, the complexity of it, and difficulty to personalize a treatment plan.

My primary doctor for my RSD is my podiatrist who is pretty familiar with RSD/CRPS, but I also see a pain management doctor. These two consult with each other and on the same page as far as your treatment.

There are a lot of things that can help you but you need to adopt a methodical testing strategy of these things with the help of professionals that have a good fundamental understanding of the disorder.

Good luck!
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Old 05-08-2010, 10:29 AM #12
finz finz is offline
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Just wanted to add........

Please never think it's rude to jump in with questions.....That's what we are here for !

I get some relief with 2400mg of Neurontin. I still require narcotics too.
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Old 05-08-2010, 09:29 PM #13
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I am highly allergic to Neurontin. I hallucinate and slur my words and it makes my skin crawl...Lyrica is much worse for me and the reaction is VERY severe. I do better with antidepressants, xanax and hydrocodone....I hope everything works out for you
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